Avsnitt
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Who knows about Acute Symptomatic Seizures and how the babies and children experiencing them can be carefully weaned off of the anti-seizure medications they are on? Paediatric neurologist and epilepsy specialist Maria Gogou from University General Hospital of Alexandroupolis, Greece, explains more. Paediatric neurologist and epilepsy specialist Maria Gogou from University General Hospital of Alexandroupolis, Greece, explains more.
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๐ Website & more about Maria ๐
https://www.torierobinson.com/epilepsy-sparks-insights/maria-gogou-acute-symptomatic-seizures-weaning-babies-asms
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Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐ https://www.epilepsysparks.com/glossary
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Children may benefit from being weaned off of anti-seizure medications when they are on the ketogenic diet. Plus, find out how the ketogenic diet can significantly benefit children with epilepsy - even when it doesnโt control their seizures! Paediatric neurologist Maria Gogou discusses her work in managing rare and complex epilepsies in children.
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๐ Paper: โAntiseizure medication reduction and withdrawal in children with drug-resistant epilepsy after starting the ketogenic dietโ ๐
https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.15377
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๐ Website, transcription, & more about Maria ๐
https://www.torierobinson.com/epilepsy-sparks-insights/maria-gogou-staying-on-a-keto-diet-that-doesnt-work-dravet
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Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐https://www.epilepsysparks.com/glossary
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๐ฒ Join me on social media!
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Saknas det avsnitt?
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David Henshall shares how information gathered when researching worms led to the discovery of microRNA, a far improved understanding of the epilepsies, and potential treatments - all explained in his new book (link below)! This is episode 2 of 2.
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Davidโs book ๐
https://www.amazon.co.uk/Fine-Tuning-Life-MicroRNAs-Genomes-Regulators/dp/1009466429/ref=sr_1_1
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๐ Website & more about David: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/david-henshall-micro-rna-epilepsy
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Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป
https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#epilepsy #mrna #genetics #geneticepilepsy #DavidHenshall
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David Henshall discusses the role and importance the role of microRNAs in epilepsy; which act as master regulators of gene activity and help stabilise the gene pathway. He discusses the potential of RNA therapy in treating epilepsy and the challenges of delivering RNA molecules to the brain. Henshall's book, 'Fine Tuning Life: A Guide to MicroRNAs, Your Genome's Master Regulators,' explores the fascinating world of microRNAs and their impact on gene regulation.
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Davidโs book ๐
https://www.amazon.co.uk/Fine-Tuning-Life-MicroRNAs-Genomes-Regulators/dp/1009466429/ref=sr_1_1
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๐ Website & more about David: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/david-henshall-fighting-epilepsy-with-micrornas
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป
https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#epilepsy #mrna #genetics #geneticepilepsy #DavidHenshall
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Epileptologist Eddie Chengo from Kenya discusses the stigma faced by people affected by epilepsy in Africa, explaining that around 75% of people with epilepsy in the region experience stigma and emphasising the importance of addressing this whilst implementing medical treatment. Eddie also shares the various initiatives and research projects his organisation is undertaking to raise awareness and challenge the stigma associated with epilepsy.
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๐ Eddie's papers ๐
https://www.researchgate.net/scientific-contributions/Eddie-Chengo-44151310
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๐ Website & more about Eddie ๐
https://www.torierobinson.com/epilepsy-sparks-insights/eddie-chengo-epilepsy-stigma-kenya
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Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐ https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#epilepsy #neurology #stigma #discrimination
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A mutation of a gene can lead to lack of absorption of glucose (our fuel) and cause epilepsy! Carla Marini, a paediatric neurologist and neuropsychiatrist tells us all about the rare epilepsy and metabolic disorder GLUT1 Deficiency Syndrome, emphasising the importance of early diagnosis, treatment using the ketogenic diet (which can help control seizures, improve cognitive function, and decrease the impacts of movement disorders). She also highlights the value of working closely with patient and family groups to understand the clinical manifestations and natural history of the disease. Carla shares an uplifting success story of a patient who has thrived with early intervention.
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Papers mentioned ๐
โGlucose Transporter 1 Deficiency as a Treatable Cause of Myoclonic Astatic Epilepsyโ:https://jamanetwork.com/journals/jamaneurology/fullarticle/1107863
โEarly onset absence epilepsy due to mutations in the glucose transporter GLUT1โ:https://www.researchgate.net/publication/26864996_Early_onset_absence_epilepsy_due_to_mutations_in_the_glucose_transporter_GLUT1
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๐ Website & more about Carla ๐
https://www.torierobinson.com/epilepsy-sparks-insights/carla-marini-glut1-disorder-metabolism-genetic
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Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐ https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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Neuroscientist Nazanin Azarinejad Mohammadi discusses her research on epilepsy genetics, the clinical and functional characterisation of GABAA-receptor related disorders, and how mutations in the GABAA-receptor subunits can lead to epilepsy and morbidities. Nazanin also highlights the variability in symptoms among individuals with the same mutation and the need for further research to understand the factors that contribute to this variability. Plus, emphasised is the importance of genetic testing and personalised treatment for patients with these mutations.
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Paper: โClinical and functional characterization of GABAA-receptor related disorders: translating genetic diagnostics into personalized treatmentโ ๐
https://portal.findresearcher.sdu.dk/en/publications/clinical-and-functional-characterization-of-gabaa-receptor-relate
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๐ Website & more about Nazanin ๐
https://www.torierobinson.com/epilepsy-sparks-insights/nazanin-azarinejad-mohammadi-genetic-testing-personalised-treatment-GABA-receptors
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Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐ https://www.epilepsysparks.com/glossary
-----------------------------------------
๐ฒ Join me on social media!
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As well as preventing up to 100% of seizures in 20% of those with refractory focal epilepsy, Cenobamate may also (indirectly), positively impact mental health, cognitive function and reduce seizure propagation. Ricardo Morcos shares information on the titration of Cenobamate, how it is not suitable during pregnancy, and the importance of a 1:1 clinician-patient relationship. This is part 2 of 2.
Please note that this is not an endorsement of any particular anti-seizure medication (Cenobamate or any of the others mentioned) and any questions or ideas from a patient or carer must be brought up with oneโs neurologist/epileptologist.
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Spanish consensus on the management of concomitant anti-seizure medications when using Cenobamate in adults with drug-resistant focal seizures ๐
https://www.researchgate.net/publication/379572148_Spanish_consensus_on_the_management_of_concomitant_antiseizure_medications_when_using_cenobamate_in_adults_with_drug-resistant_focal_seizures
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๐ Website & more about Ricardo ๐
https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-mocos-starting-cenobamate-cognition-pregnancy
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Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐ https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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As well as preventing up to 100% of seizures in 20% of those with refractory focal epilepsy, Cenobamate may also (indirectly), positively impact mental health, cognitive function and reduce seizure propagation. Ricardo Morcos shares information on the titration of Cenobamate, pregnancy, and the importance of a 1:1 clinician-patient relationship. This is part 2 of 2.
Please note that this is not an endorsement of any particular anti-seizure medication (Cenobamate or any of the others mentioned) and any questions or ideas from a patient or carer must be brought up with oneโs neurologist/epileptologist.
------------------------------------------
Spanish consensus on the management of concomitant anti-seizure medications when using Cenobamate in adults with drug-resistant focal seizures
https://www.researchgate.net/publication/379572148_Spanish_consensus_on_the_management_of_concomitant_antiseizure_medications_when_using_cenobamate_in_adults_with_drug-resistant_focal_seizures
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๐ Website & more about Ricardo ๐
https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-mocos-cenobamate-game-changer-for-epilepsy
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐ https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#cenobamate #focalepilepsy #partialseizures #epilepsy #RicardoMocos
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For the 11th World Brain Day, hear from co-chair and lead neurologist Tissa Wijeratne, who explains how so many of the brain disorders in nearly 4 billion people can be prevented, and how you can help this happen! Links to the free World Brain Day webinar, and more, are below.
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๐ง Listen to ESI on Spotify!๐
https://open.spotify.com/show/14rwL06qUowezZQGwpR7GW?si=dE4AEAsrQhqbeDc8dKM-dQ
Also on Apple Podcasts or anywhere else you listen!
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World Brain Day ๐
https://wfneurology.org/activities/news-events/wfn-news/2024-05-07-wfn-wbd
World Brain Day webinar ๐
https://us02web.zoom.us/webinar/register/WN_ayYclSOLRSKwriPFg7S5bg#/registration
World Brain Day content toolkit ๐
https://drive.google.com/drive/folders/1TD_CyerWAa_x65614G6UmWJ8WUBocGNz
World Health Organization Intersectoral Global Action Plan ๐
https://www.who.int/publications/i/item/9789240096356
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๐ Website & more about Tissa ๐
https://www.torierobinson.com/epilepsy-sparks-insights/tissa-wijeratne-world-brain-day-2024
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Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- X: https://twitter.com/torierobinson10
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#WorldBrainDay #WBD2024 #BrainHealthandPrevention #TissaWijeratne
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People forget to bring up memory issues with their neurologistโฆbecause of their memory issues! Discover the potentials and limitations of neurosurgery and neuroplasticity with epileptologist Jon Kleen from UCSF medical Center.
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๐ Website & more about Jon: ๐
https://www.torierobinson.com/epilepsy-sparks-insights/jon-kleen-epilepsy-surgery-neuroplasticity-memory-cognition
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐ https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#cognition #memory #epilepsy #jonkleen
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Learn all about how people can have memory and other cognitive struggles as part of their epilepsy - in part 1 of 2 with epileptologist Jon Kleen from the UCSF Medical Center, USA! Jon speaks about his career focus, types of cognitive impairments, impacts on quality of life, and more.
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๐ Website & more about Jon: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/jon-kleen-cognitive-impairments-epilepsy-research
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#cognition #memory #epilepsy #jonkleen
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Stress and anxiety levels are incredibly high amongst the population of those with an epilepsy and are commonly seizure triggers. Neil Shah of the Stress Management Society speaks of stress in today's society, the importance of recognising and addressing it, removing the guilt, shame, and stigma associated with it, and the power we have to limit it.
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๐ Website & more about Neil: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/neil-shah-managing-stress-anxiety-with-epilepsy
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#epilepsy #stress #anxiety #sleep #neilshah
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Learn of when an Autoimmune-Associated Epilepsy can onset, potential causes, and the needs of people affected - other than seizure control! All in part 2 of 2 with epileptologist Claude Steriade fromโโ NYU Langone Health Epilepsy Center.
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๐ Website & more about Claude: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/claude-steriade-other-symptoms-of-autoimmune-associated-epilepsy
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#autoimmune #autoimmuneepilepsy #neurology #immunology
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Hear about Autoimmune-Associated Epilepsy and the intersection between epilepsy and immunology - in part 1 of 2 with epileptologist Claude Steriade from NYU Langone Health Epilepsy Center! Claude explains the causes, mechanisms, and impacts of Autoimmune-Associated Epilepsy upon people's lives, plus, how crucial early diagnoses and intervention are.
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๐ Transcription & more about Claude: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/claude-steriade-autoimmune-associated-epilepsy-immunology
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-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป
www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#autoimmune #autoimmuneepilepsy #neurology #immunology
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Mark Cook and Torie discuss the significant improvements in epilepsy treatments over the past few decades - thanks to technologies like MRI and genetics. Mark also explores the issue of overreporting and underreporting of seizures by patients and the potential of ambulatory EEG monitoring and big data analysis to provide a more accurate understanding of seizure activity which can lead to both improved treatments and improving peoplesโ quality of life.------------------------------------------๐ Transcript & more on Mark: ๐๐ปhttps://www.torierobinson.com/epilepsy-sparks-insights/mark-cook-huge-advances-in-eeg-monitoring-analysis-----------------------------------------Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ปwww.epilepsysparks.com/glossary------------------------------------------๐ฒ Join me on social media!- X: https://twitter.com/torierobinson10 - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.instagram.com/torierobinson10 - Facebook: https://www.facebook.com/TorieRobinsonSpeaker - TikTok: https://www.tiktok.com/@torierobinson10 #epilepsy #medtech #EEG #ambulatoryEEG
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Deb Pal and Paul Gringras discuss their research on the links between sleep and seizures in epilepsy; sharing their work on the CASTLE project, which aims to improve sleep and Quality of Life for children, young people, and families affected. They discuss both their app called COSI - which provides evidence-based sleep interventions for parents, and the upcoming CASTLE conference, where they shall disseminate their research findings and discuss the importance of personalised approaches to sleep management in epilepsy.------------------------------------------Interested in attending the conference? ๐ซContact us via [email protected] or via our X accounts @palneurolab, @TorieRobinson10, or @EpilepsySparks.------------------------------------------๐ Website & more about Deb and Paul: ๐๐ปwww.torierobinson.com/epilepsy-sparks-insights/deb-pal-paul-gringras-exploring-the-links-between-sleep-epilepsy-castle-----------------------------------------Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ปwww.epilepsysparks.com/glossary------------------------------------------๐ฒ Join me on social media!- X: https://twitter.com/torierobinson10- LinkedIn: https://www.linkedin.com/torierobinson- Instagram: https://www.instagram.com/torierobinson10- Facebook: https://www.facebook.com/TorieRobinsonSpeaker- TikTok: https://www.tiktok.com/@torierobinson10#sleep #epilepsy #epilepsyresearch #CASTLE #COZY
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What should someone do if interested in adopting the ketogenic diet or looking further into "metabolic psychiatry"? Hear about sacrifices, benefits, weight loss, constipation, nutrition, and having the right support. All in part 3 of 3 with the โpharmacist who gave up drugsโ, Graham Phillips.
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๐ Website & more about Graham: ๐๐ป
www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-epilepsy-changing-metabolism-stabilise-brain-ketogenic
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป
www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#epilepsy #keto #ketogenic #metabolichealth #weightloss
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Learn of the evolution of the ketogenic diet, metabolic psychiatry, the treatment overlap between different diagnoses (e.g. the epilepsies and mood disorders), recommended reads, and the cognitive dissonance of many regarding the ketogenic diet. This is part 2 of 3 with the Pharmacist Who Gave Up Drugs: Graham Phillips.
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๐ Website & more about Graham: ๐๐ป
www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-hunger-mood-epilepsy-metabolism-ketogenic
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#epilepsy #keto #ketogenic #metabolichealth #weightloss
_______________
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The Pharmacist Who Gave Up Drugs introduces us to the impacts of the western diet on our health, quality of life, life expectancy - and the potential benefits of the ketogenic diet - in part 1 of 3: Graham Phillips.
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๐ Website & more about Graham: ๐๐ป
www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-ketogenic-diet-pharmacist-part1
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#epilepsy #keto #ketogenic
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