Avsnitt
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M. Scott Perry explains how Epilepsy Researchers require intros and support to be the best that they can be and initiate, manage, and see results. Itโs possible through the Pediatric Epilepsy Research Consortium (PERC).
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๐ Website & more about Scott: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/m-scott-perry-pediatric-epilepsy-research/consortium
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
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๐ฒ Join me on social media!
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#epilepsy #pediatricepilepsy #scottperry #PERC #epilepsyresearch
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Hear about research into a new way of inhibiting temporal lobe seizure activity through GABAergic interneuron cell therapy! With epileptologist and neuroscientist David Spencer.
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๐ Website & more about David: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/david-spencer-preventing-seizures-using-stem-cells
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#epilepsy #DavidSpencer #stemcell #interneuron #GABA
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Saknas det avsnitt?
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It's wild: when clinicians mistake an epilepsy (caused by a brain tumour!) for menopause! Or, when a parent doesn't believe that their daughter could have an epilepsy...! Why aren't organisations and governments promoting epilepsy awareness as well as they do stroke and MS?! Tune in to hear all about it from leading epilepsy specialist: Jacqueline French.
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๐ Website & more about Jacqueline: ๐๐ป
jacqueline-french-epilepsy-menopause
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๐ Kin - that Irish TV series: ๐๐ป
IMDB
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป
epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#epilepsy #epilepsyresearch #JacquelineFrench #humanepilepsyproject #EpilepsyStudyConsortium
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Hear about the one-of-a-kind 6th Dianalund International Conference on Epilepsy in May 2024 - with lead genetic clinicians and researchers Elena Gardella, Rikke Mรธller, and Guido Rubboli.
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๐ Website & more about Elena, Rikke, and Guido: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/6th-dianalund-international-conference-epilepsy-genetics-denmark-elena-gardella-rikke-moller-guido-rubboli
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#epilepsy #epilepsygenetics #monogenic #phenotypes #filadelfia #danishepilepsycenter #DICE
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5% of a cohort* had at least 1 car accident (and up to 3) before their epilepsy diagnosis! Hear about the global Human Epilepsy Project by Jacqueline French and learn how seizures can present in so many different ways!
*450 people
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๐ Website & more about Jacqueline: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/jacqueline-french-human-epilepsy-project
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป
https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- X: https://twitter.com/torierobinson10
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#epilepsy #epilepsyresearch #JacquelineFrench #humanepilepsyproject #EpilepsyStudyConsortium
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Do Autism & Intellectual Disability Come With Epilepsy? Learn of the Epilepsy, Autism and Intellectual Disability โtriadโ - studied by clinician scientist, epileptologist: Vaishnav Krishnan.
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๐ Website & more about Vaishnav: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/vaishnav-krishnan-epilepsy-autism-intellectual-disability-triad
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป
https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- X: https://twitter.com/torierobinson10
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#epilepsy #neurology #autism #intellectualdisability #vaishnavkrishnan
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Learn of the huge reduction in seizures amongst adults with the epilepsy Lennox-Gastaut Syndrome - as the result of DBS! With Linda Dalic.
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๐ Website & more about Linda: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/linda-dalic-stimulating-brain-reduce-seizures-neuromodulation
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- X: https://twitter.com/torierobinson10
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#epilepsy #LindaDalic #LGS #DBS #Neuro
_______________
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Hear about the origins of Purple Day, its purpose, the positivity and how to make a difference! With founder: Cassidy Megan!! We talk about how Purple Day was founded, Cassidy's personal epilepsy diagnosis, school, stigma, the diversities of the epilepsies, SUDEP, varying cultural experiences, media portrayals, credible sources of information, and brilliant clinicians!
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๐ Website & more about Cassidy: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/cassidy-megan-purple-day-openness
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
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#purpleday #epilepsy #cassidymegan
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Brain, Skull, And Neck Implants For Epilepsy?! What's the epilepsy treatment called VNS? Or DBS? Or RNS?! Learn about these cool neuromodulation treatments that can help to prevent and/or control epileptic seizures (!) with star epileptologist Anna Bochenek.
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๐ Website & more about Anna: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/anna-bochenek-neuromodulation-vns-dbs-rns
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- X: https://twitter.com/torierobinson10
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#epilepsy #neuromodulation #AnnaBochenek
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Brain tumours vary greatly and 30% of them cause an epilepsy to develop - hence the name Brain Tumour Related Epilepsy. Hear more for Brain Tumour Awareness Month from cancer neuroscientist: Kate Connor.
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๐ Website & more about Kate: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/kate-connor-epilepsy-brain-tumours-awareness-month
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป
https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
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#epilepsy #braintumour #braintumor #braintumourrelatedepilepsy #KateConnor
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Surprising and exciting rare epilepsy (STXBP1) research discoveries that have led to the enhancement of excitatory synapses as a proposed treatment - by Jean-Franรงois Perrier of the University of Copenhagen, Denmark.
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๐ Website & more about Jean-Franรงois: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/jean-francois-perrier-STXBP1-excitatory-inhibitory-synapses
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- X: https://twitter.com/torierobinson10
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#epilepsy #STXBP1 #Jean-FranรงoisPerrier #genetics
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Could we accurately predict epileptic seizures using AI? How accurate do predictions need to be? How cool to use do devices need to be?! Could seizure forecasting reduce injuries, decrease mortality, and improve peopleโs quality of life? Hear all about it from neurologist: Daniel Goldenholz.
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๐ Website & more about Daniel: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-seizure-forecasting-artificial-intelligence
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
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#epilepsy #medtech #danielgoldenholz
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How useful is and can AI be in helping people with an epilepsy? How safe it it? What are the biases to be challenged and the ethics to be followed? Hear answers from Daniel Goldenholz of Harvard Beth Israel Deaconess Medical Center.
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๐ Website & more about Daniel: ๐๐ป
www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-ai-safety-ethics-biases
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Chapters ๐
00:00 Clip & intro
00:59 Meet Daniel
01:30 AI is fun and important for epilepsy
02:33 Using AI usefully and safely
05:12 Ethics and AI biased training
07:40 Tricking AI using AI tricks
08:32 Explainable AI controversy
10:40 AI intro pace in healthcare: benefiting and protecting humans
13:30 Epilepsy industry is full of data
14:02 When people don't want to wait
16:03 Not all epilepsy apps are proven to work
17:22 Thank you Daniel
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
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#epilepsy #medtech #danielgoldenholz #aibias #medicalai
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โEpilepsy is not only a disease, epilepsy is a symptom of a brain disease. And brain health is everything, belongs to everybody!โ Learn more of from and hear of the exciting, upcoming Kuopio Epilepsy Symposium in March 2024 - with exciting lead neurologist, researcher, and world-changer: Reeta Kรคlviรคinen.
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๐ Website & more about Reetta: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/reetta-kalviainen-genetic-rare-epilepsy-symptom-symposium
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- X: https://twitter.com/torierobinson10
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#epilepsy #padaczka #ReettaKรคlviรคinen
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Hear all about International Epilepsy Day, the needs of those affected by the epilepsies, eradicating stigma, treating and preventing epilepsy, and hope for the future; all with global lead Helen Cross.
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๐ Website & more about Helen: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/helen-cross-international-epilepsy-day-----------------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
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#epilepsy #InternationalEpilepsyDay #HelenCross #GreatOrmondStreet
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For Children's Mental Health Week meet Kirsten McHale who shares the complex needs of many children with an epilepsy, how their needs are not being met (in the UK), and how services must be improved.
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๐ Website & more about Kirsten: ๐๐ป
www.torierobinson.com/epilepsy-sparks-insights/kirsten-mchale-real-needs-children-with-epilepsy
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Children's Mental Health Week:
www.childrensmentalhealthweek.org.uk
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป
https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
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#epilepsy #epilepsynurse #youngepilepsy #childrensmentalhealthweek
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Why are only a small percentage whoโd benefit from epilepsy surgery getting it? Hear from neurosurgeon Luke Tomycz of the Epilepsy Institute of New Jersey.------------------------------------------
๐ Website, transcription, and more about Luke: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-why-arent-more-people-having-epilepsy-surgery
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
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#epilepsy #LukeTomycz #epilepsysurgery #neurosurgery
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Hear about ways of measuring epilepsy surgery success, risks, and managing expectations. With neurosurgeon Luke Tomycz.-----------------------------------------๐ Website, transcript, and more about Luke: ๐๐ปhttps://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-epilepsy-surgery-success-measurement-engel-class
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
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#epilepsy #LukeTomycz #epilepsysurgery #neurosurgery
5v102IYOXYSvK83CKKU2
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Learn about epilepsy surgery and potential benefits and risks - from epilepsy neurosurgeon of the Epilepsy Institute of New Jersey: Luke Tomycz.
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๐ Website, transcription, and more about Luke: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-safety-efficacy-epilepsy-surgery
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
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#epilepsy #LukeTomycz #epilepsysurgery #neurosurgery
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Brain tumours commonly cause epilepsy. Learn more about research into this and Brain Tumour-Related Epilepsy, today with Mark Cunningham of Trinity College Dublin.
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๐ Website & more about Mark: ๐๐ป
https://www.torierobinson.com/epilepsy-sparks-insights/mark-cunningham-brain-tumours-tumors-epilepsy
-----------------------------------------
Donโt understand all the terms used? Check out the Epilepsy Sparks Glossary! ๐๐ป https://www.epilepsysparks.com/glossary
------------------------------------------
๐ฒ Join me on social media!
- LinkedIn: https://www.linkedin.com/torierobinson
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#epilepsy #BrainTumours #BrainTumors #MarkCunningham #RCSI
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