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In this final episode of our special 4 part series, Hospice Educator Barbara Karnes shares the personal story of her husband’s end of life journey and death. She opens up about all the emotions she experienced as she and her family supported Jack Karnes after his diagnosis with a terminal illness. Jack died four months after he was diagnosed with lung cancer. Barbara and Jack had been married for 61 years at the time of his death. After working over 40 years in end of life care, Barbara experienced all the aspects of interdisciplinary hospice care, death, and grief in her personal life.
We’re grateful for Barbara’s generosity and vulnerability in telling her story. After all the years she has spent educating hospice workers and end of life caregivers, she’s still teaching us.
We’d like to thank Lisa Pahl, founder of The Death Death and End of Life, for sponsoring this special series in honor of National Family Caregivers Month and National Hospice and Palliative Care Month (National Home Care Month).
Here’s are some details of what Barbara shares in this touching interview:
What the process of a hospice admission is truly likeThe impact of staffing changes on the trust bond with a caregiverLearning to live as a “me” after living as a “we” after 60 years of marriageThe many emotions she experienced when Jack was terminally illThe music she wants to be part of her advance care planConnect with Barbara Karnes:
Website: bkbooks.com
Blog: bkbooks.com
Shop her products: bkbooks.com
Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube
Email: [email protected]
Thank you to our series sponsor The Death Deck!
Connect with the End of Life Deck and the Death Deck:
Website: thedeathdeck.comhttps://thedeathdeck.com/
Shop: End of Life Deck Death Deck
Socials for the Death Deck: Facebook IG Twitter (X)
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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Susan Combs will tell you she had a great dad. Her caregiving experience at the end of his life inspired her to give back to the veteran community. Susan’s dad Major General Roger E. Combs was a huge influence on her life. Roger battled with throat cancer related to Agent Orange for ten years, eventually dealing with a feeding tube toward the end of his life. A simple act - his request to eat pancakes - launched a non-profit organization that supports military veterans.
Susan is the president of Combs and Company, based in New York City. Her movement Pancakes for Roger occurs every February. For every pancake-loving picture posted on social media post using the hashtag #PancakesForRoger, Combs & Company will make a donation to the University of Missouri School of Law Veterans Clinic which helps veterans and their families navigate the VA claims process and secure disability benefits when they are faced with obstacles along the way.
Here’s some advice Susan gives to other end of life caregivers:
Do one thing every day for yourselfBring in your “crew”, those friends who can support youHave the advance care plan conversations, even though it’s difficultConnect with Susan Combs and Pancakes for Roger:
Website: pancakesforroger.org
Book: Pancakes for Roger
Social media: Instagram Facebook Twitter (X) YouTube
Honor your veteran on their Wall of Honor:
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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Saknas det avsnitt?
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After a 40 year hospice career, Barbara Karnes knows a thing or two about end of life care. Today’s special episode is part 3 of our 4 part series in honor of National Family Caregivers Month and National Hospice and Palliative Care Month. Barbara calls her introduction to working with the dying “divine intervention” that occurred because of a random connection with a hospice worker. She spent five years working at the bedside, eventually moving into administrative positions and management. As a hospice educator, she supports family caregivers and end of life workers alike.
Highlights from Barbara’s interview include:
A snapshot of Barbara’s advance care plan and why she thinks goodbyes are important Her recognition of how hard it was to balance work life and family life as a young motherHow Barbara sees hospice work as a privilegeConnect with Barbara Karnes:
Website: bkbooks.com
Blog: bkbooks.com
Shop her products: bkbooks.com
Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube
Email: [email protected]
Thank you to our series sponsor The Death Deck!
Connect with the End of Life Deck and the Death Deck:
Website: thedeathdeck.comhttps://thedeathdeck.com/
Shop: End of Life Deck Death Deck
Socials for the Death Deck: Facebook IG Twitter (X)
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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Cuddle Cots and Cuddle Blankets allow families to spend more time with a loved one after a death, providing an opportunity for end of life workers to do death care better. Danielle Franck of Flexmort shares her personal experience with a Cuddle Cot in this interview. *Warning - This episode contains a description of the loss of a stillborn infant. It may not be for all listeners. Please take care of yourself.
Danielle is the Business Development Executive of the US at Flexmort, a company that designs and manufactures flexible mortuary solutions for the storage and cooling of a body after death occurs. She is passionate about fostering open discussions around death and loss. Danielle’s personal story is a testimonial to the benefits of utilizing a Cuddle Cot.
Cuddle Cots and Cuddle Blankets keep a body cool after death, enabling families to spend additional time with a loved one. That extra time creates space for meaningful goodbyes, rituals, and post mortem care that supports a healthy grieving process. The Cuddle Blankets are portable and can be used when a home funeral is planned. It’s also a great tool to use when there’s a plan for human composting or aquamation, and eliminates the need for dry ice when a family doesn’t want embalming. A personal quilt or blanket can be placed on top of the Cuddle Blanket to create a personal touch.
Connect with Flexmort:
https://cuddlecot.com/
https://www.linkedin.com/company/flexmort/
https://www.instagram.com/cuddlecot_/
https://www.facebook.com/CuddleCotTM
Thank you to our series sponsor The Death Deck!
Connect with the End of Life Deck and the Death Deck:
Website: thedeathdeck.comhttps://thedeathdeck.com/
Shop: End of Life Deck Death Deck
Socials for the Death Deck: Facebook IG Twitter (X)
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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In episode two of our special four part series, hospice icon Barbara Karnes shares what it was like working in hospice in the early days, before there was a model for working with the dying. Barbara has worked in end of life care for over 40 years, educating and supporting end of life workers and family caregivers alike. In this conversation, we talk about what hospice work was like early in her career.
Here are some highlights from this episode:
Barbara shares how they cared for patients, learning how people die and the best ways to care for them.Barbara talks about how other disciplines came to be integrated into the care of patients, and how they learned to collaborate as an interdisciplinary team. We talk about the myths surrounding hospice that have persisted through the years, and still remain in people’s minds today.Connect with Barbara Karnes:
Website: bkbooks.com
Blog: bkbooks.com
Shop her products: bkbooks.com
Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube
Email: [email protected]
Thank you to our series sponsor The Death Deck!
Connect with the End of Life Deck and the Death Deck:
Website: thedeathdeck.comhttps://thedeathdeck.com/
Shop: End of Life Deck Death Deck
Socials for the Death Deck: Facebook IG Twitter (X)
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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When his dad died, Adam Zuckerman created a highly organized kit for managing his estate. As founder of Buried in Work, he helps people get their end-of-life preparation in place. Adam’s family learned the ins and outs of hospice as they supported his dad at the end of his battle with leukemia. Although their time using hospice care was short, Adam saw the benefits of end of life care first hand.
Adam's mission is to empower individuals of all ages to navigate the intricacies of estate planning with confidence and ease. Through Buried in Work, he seeks to revolutionize the way people approach end-of-life preparations, ensuring that everyone has access to the resources they need to secure their legacy and protect their loved ones. Check out the CLEAR Kit from Buried in Work here.
Connect with Adam Zuckerman and Buried in Work:
Website: buriedinwork.com
Email: [email protected]
Social Media: Facebook IG LinkedIn Twitter (X) YouTube TikTok
Podcast: Buried in Work Podcast
Find all the resources from Buried in Work: BIW Resources
Order your CLEAR Kit today (Comprehensive Legacy & Estate Administration Repository Kit): CLEAR Kit
Purchase the One More Story card deck: One More Story
Purchase the Nothing Left Unsaid card deck: Nothing Left Unsaid
Connect with the End of Life Deck and the Death Deck:
Website: thedeathdeck.comhttps://thedeathdeck.com/
Shop: End of Life Deck Death Deck
Socials for the Death Deck: Facebook IG Twitter (X)
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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In honor of National Hospice and Palliative Care Month - and National Family Caregivers Month - we’re featuring a special 4-part series with special guest Barbara Karnes, Hospice Nurse and End of Life Educator. In the first episode of the series, Barbara shares how she got started in end of life care back before the Medicare hospice benefit was established in the 1980’s.
Here are some highlights of this special episode:
Barbara thinks she should have been a social worker but her mother talked her into nursing.She and her fellow hospice nurses learned how to provide their own self care without really knowing what it was.Barbara’s aversion to causing patients any pain or suffering made patient care difficult for her.She believes it’s important for hospice leadership to truly understand end of life work, and to have a comprehensive knowledge of hospice care.Barbara believes sacred rituals and beautiful memories can be created at the time of death.Connect with Barbara Karnes:
Website: bkbooks.com
Blog: bkbooks.com
Shop her products: bkbooks.com
Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube
Email: [email protected]
Thank you to our series sponsor The Death Deck!
Connect with the End of Life Deck and the Death Deck:
Website: thedeathdeck.comhttps://thedeathdeck.com/
Shop: End of Life Deck Death Deck
Socials for the Death Deck: Facebook IG Twitter (X)
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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Death educator Lee Warren believes preparing for death in advance makes a good death possible.
Over a period of two years, she experienced several deaths in her small community of 125 people, teaching her the best lessons about death as she cared for them.
Those deaths, and the generous people who experienced them, offered an incredible opportunity for Lee to reweave a more holistic approach to end-of-life than the one generally offered to us in the U.S. The outcome of stewarding those deaths together as a community, including after-death care, home funerals, and home burials, was life changing and heart opening for Lee. She has channeled the wisdom she learned into work as a Death Educator and End-of-Life Preparation Guide.
Connect with Death Educator and End-of-Life Preparation Guide Lee Warren
Website: queenofdeath.org/course reclaimingwisdom.com/about
Email: [email protected]
Socials for Lee Warren: Facebook IG
Connect with the End of Life Deck and the Death Deck
Website: thedeathdeck.comhttps://thedeathdeck.com/
Shop: End of Life Deck Death Deck
Socials for the Death Deck: Facebook IG Twitter (X)
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer
Website: theheartofhospice.com
Email: [email protected]
More podcast episodes: The Heart of Hospice Podcast
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Serious illness and caregiving can be isolating. GrandPad’s AI technology keeps seniors safely connected to loved ones. Isaac Lien and his dad Scott co-founded GrandPad to meet the needs they saw in Scott’s mom. Their new AI app Grandie offers audio interaction for the user without requiring a certain format, and even learns the user’s voice and way of speaking. Because GrandPad’s network is private and encrypted, users can share photos or videos and make video calls without worrying about robocalls or spam. No one can be part of a user’s network unless they’re been invited by the family administrator.
GrandPad makes a fantastic holiday gift for older adults, especially those living at a distance from family. Its features include:
• phone calls • video calls • video sharing • internet browning • 911 emergency use • 4G LTE data plan
Watch a webinar to hear more about GrandPad’s features here.
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Virginia Marcolin’s background in fashion and textiles led her to start designing burial shrouds, experimenting with luxurious natural fabrics and vegetable dyes. The result was Sanctum, a brand of high-end scented burial shrouds for the natural funeral industry. Virginia sources a variety of high-quality organic fabrics which are soft to the touch and biodegradable. Fabrics are colored with non-toxic plant dyes and infused with a proprietary plant-based antibacterial formula, which inhibits germ growth and neutralizes malodor.
The result for families is a comforting, beautiful, aromatic cocoon wrapped around their loved one which will carry them to their final resting place. Shrouds can be part of family-guided death care, green funerals, or human composting. A shroud can even be part of a cremation. According to the Sanctum website, their mission is to enhance the sensory experience of alternative funerals for loved ones while eliminating toxins and pollutants from traditional burial practices.
You can find the full selection of these Earth-friendly, elegant shrouds at sanctumshrouds.com.
Read more about how Sanctum Shrouds came to be here.
Find Sanctum’s line of shrouds for pets, Moonbeam Pet.
Socials for Sanctum Shrouds:
Facebook Instagram Pinterest. LinkedIn
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a residential hospice home, and why she stays in this industry. #hospice #endoflife #death #dying #caregiver #caregiving
https://pod.co/the-heart-of-hospice-podcast/quality-care-is-the-goal-at-residential-hospice-homes
Residential hospice homes provide compassionate caregiving support for the dying. My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a hospice home, and why she stays in this industry.
Susan has a passion for serving hospice and palliative care patients and families and has been a pioneer in developing hospice programs throughout Oregon since 1993 when she helped to establish the Asante Hospice in Southern Oregon. Susan went on to pioneer a residential hospice model in Oregon, leading the way with both fundraising and the full building and policy development of Celia's House in Medford, Oregon and Hopewell House in Portland. She is motivated to give patients and their caregivers a greater voice in their end-of-life experience and in facilitating meaningful advanced care planning conversations between patients and families.
Social media for Susan Hearn
LinkedIn
Interested in purchasing a GrandPad to stay connected with a senior loved one? Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
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The last conversation you want to have shouldn’t be the last one you do have. Filmmaker Johanna Lunn is using her lifelong curiosity about death to bring documentaries about "What happens when we die," to life. She’s the co-founder of the When You Die Project which hosts a resource-rich website, podcast, and documentary trilogy.
The When You Die Project is here to facilitate a cultural dialogue most often avoided — one that begins at the end. From existential afterlife questions such as “What happens when you die?” to palliative care, and the nuts and bolts of preparing for end of life. If it has to do with death, they’re talking about it.
Award-winning producer, director, and writer Johanna Lunn has contributed to many profoundly thought-provoking programs during her 35 years in filmmaking. In addition to film festival awards, her work has received eight Canadian Screen Award nominations and won three. Her work has been shown around the world.
Join When You Die on Nov. 23, 2024 for a showcase of the 3rd film in the When You Die Trilogy - Architecture of Death: The Inner World of Dying Screening, followed by a panel discussion and Q&A!
When: Nov. 23 from 4:30 - 7:30 pm PST
Where: Los Angeles Performing Arts Conservatory
Purchase your tickets here.
Follow When You Die to keep up to date on all future events, receive death-related resources, listen to podcasts, and more!
Website: www.WhenYouDie.org
Facebook: @whenyoudiecommunity
Twitter: @whenyoudie_org
Instagram: whenyoudie_org
YouTube: @whenyoudie_org
LinkedIn: https://ca.linkedin.com/company/whenyoudie-org
LinkedIn Profile: www.linkedin.com/in/johannajlunn
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Rosanne Corcoran, host of Daughter the Podcast is sharing her best advice about being a caregiver for a person dealing with dementia. As caregiver to her mother for 12 years, Rosanne learned how to navigate the healthcare system as an advocate, deal with sleep deprivation, and to care for herself along the way.
Rosanne Corcoran is the creator and host of Daughterhood the Podcast. She is also a Daughterhood Circle leader and their Director of Content. She cared for her mother through her journey with vascular dementia, starting as a supportive caregiver to an in-home sandwich caregiver for her mother’s final six years. In each monthly podcast, Rosanne interviews experts in the field, asking questions caregivers want to know the answers to – with topics ranging from dealing with dementia behaviors, to siblings and caregiving, through end of life care, grief and everything in between. Rosanne carries her authenticity and caregiving experience into each interview. Along with strategies and resources, this podcast also provides listeners with the comfort of knowing they are not facing these challenges alone.
Rosanne has been featured in NPR, CNN Health, Barron’s, and Next Avenue and was most recently named one of Next Avenue and American Society on Aging’s 2024 Advocates for Aging.
You can connect with Rosanne Corcoran:
https://www.facebook.com/DaughterhoodThePodcast/
https://www.instagram.com/daughterhood_the_podcast/
https://daughterhood.org/
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Hospice nurse and End of Life Doula Gabby Jimenez of The Hospice Heart is our guest host for today’s episode, featuring a discussion of Hospice Navigation Services. When you’re looking at making decisions about end of life care for yourself or someone you love, things can seem frightening and confusing. Hospice Navigation Services can help you figure things out. We can help you feel just a little less lost.
Hospice Navigation Services was founded by Hospice and Palliative Certified RN Helen Bauer, a respected voice in the end of life industry. Helen acts as Lead Navigator for Hospice Navigation Sessions and can guide you through discussions about hospice care, how to choose an agency, and whether your current hospice care is the best fit for you and your person.
It’s your journey. We'll be your expert guide.
Book your Hospice Navigation Session today at theheartofhospice.com.
Connect with Gabby Jimenez:
Website: thehospiceheart.net
Contact: thehospiceheart.net/contact
Buy Gabby’s books: thehospiceheart.net/books
Book Gabby to speak at your event: thehospiceheart.net/book-gabby
Social Media for Gabby Jimenez
https://www.facebook.com/thehospiceheart.net
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Hospice and palliative physician Dr. Matthew Tyler is teaching us how to have conversations with your healthcare team about what matters most to you. In addition to his work as medical director of palliative care services, Matthew educates the public about having meaningful discussions with their healthcare teams, especially the doctor. He calls it “How to Train Your Doctor”. People with serious illnesses, along with their decision-makers, can get better care if they know how to communicate their needs.
Matthew tackles some of the trickiest topics with his How to Train Your Doctor social media posts. Feeding tubes, CPR/DNR decisions, confusing medical jargon, and palliative care are included in YouTube videos and Instagram posts. Matthew says it’s important to determine what the patient considers a meaningful outcome, and what the goals of the patient care are.
Credit for the healthcare "f-word" (medically futile) goes to Dr. Nathan Gray, M.D. of inkvessel.com.
Connect with Dr. Matthew Tyler at howtotrainyourdoctor.com
Download your free Goals of Care Jump Starter document here.
Website: https://howtotrainyourdoctor.com/
Instagram: https://www.instagram.com/howtotrainyourdoctor/
YouTube: https://www.youtube.com/@howtotrainyourdoctor
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Being an advocate for someone in hospice care is a big job. MSW Jacob Kendall of Demystifying Healthcare is teaching us how to do it well. Advocacy for his own healthcare needs has taught him how to communicate with a healthcare team to get the best care possible. Jacob teaches about the various aspects that influence that care that’s available for patients, including time and communication. He’s also looking from a 30,000 foot view as well, acknowledging that geography, poverty, time, and policies influence the kind of care we receive.
Jacob is a fan of interdisciplinary care. He believes every specialist or discipline should be working together to create more continuity in our healthcare. In addition to clinical providers, Jacob also thinks other modalities add value to our care. Connecting with other people experiencing similar health challenges can be valuable. Jacob brings a multidimensional perspective to his work as a healthcare consumer and an educator.
Connect with Dr. Jacob Kendall, MSW MPH PhD at jacobevanskendall.com.
Talk with Jacob about speaking at your event by clicking here.
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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As co-founder of Empowered Endings, Dr. Bob Uslander, is working to shift the paradigm of End of Life Care by supporting, guiding, and teaching an empowered approach to Palliative and End of Life Care. He became aware of the gaps in hospice and palliative care that cause patients to struggle. The deaths of his parents and a dear friend provided a personal perspective into caregiving that formed Bob’s determination to meet the needs of people with serious illness in a better way.
Empowered Endings supports both patients and families through the final stages of life. Bob, his wife Medical Social Worker Elizabeth, and the Empowered Endings team ensure each person feels heard, held, and whole throughout the end of life journey. The team utilizes End of Life Doulas, nurses, a chaplain, and a grief and dementia doula.
Connect with Dr. Bob Uslander:
Website: https://empoweredendings.com/
Empowered Endings Community: https://empoweredendings.com/community/
Empowered Endings Foundation: https://empoweredendings.com/foundation/
Social Media for Empowered Endings
LinkedIn: https://www.linkedin.com/in/bobuslander/
Instagram: https://www.instagram.com/empowered_endings_/
Facebook: https://www.facebook.com/empowerendings/
Interested in purchasing a GrandPad to stay connected with a senior loved one?
Get more information at https://www.grandpad.net/thoh.
GrandPad website: https://www.grandpad.net/
Social Media for GrandPad
https://facebook.com/grandpad
https://instagram.com/grandpad_social/
https://www.linkedin.com/company/grandpad
https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q
Connect with Jodi Clock, author of It’s Complicated! at jodieclock.com
Purchase your copy of It’s Complicated! here and learn what you need to know about: Social Security, Medicare, Medicaid, Long Term Care, End-of-Life Wishes and more! It’s Complicated! has a customizable “Family Care Plan” at the end of each chapter. This care plan is also downloadable and free, regardless if you have purchased the book.
Social Media for Jodi Clock
Facebook: https://www.facebook.com/AskJodi/
Twitter (X): https://twitter.com/jodiclock
LinkedIn: https://www.linkedin.com/in/jodi-clock-b988908/
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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In part 2 of our grief series with Grief Coach Shelby Forsythia, Shelby talks about identifying your grief allies, different grief styles, and how to create continuing bonds with the ones you’ve lost. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher. Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine. Her heart and compassion is palpable in her book Your Grief, Your Way.
Connect with Shelby Forsythia:
Website: https://www.shelbyforsythia.com/
Instagram: https://www.instagram.com/shelbyforsythia/
Facebook: https://www.facebook.com/shelbyforsythia/
Free Podcast: https://www.shelbyforsythia.com/dear-grief-guide-podcast
Free Workshop: https://www.shelbyforsythia.com/free-workshop
Book, Your Grief, Your Way: https://www.shelbyforsythia.com/your-grief-your-way
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Grief Coach Shelby Forsythia is teaching us how it’s possible to grow through grief. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher. Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine. Her heart and compassion is palpable in her book Your Grief, Your Way.
Connect with Shelby Forsythia:
Website: https://www.shelbyforsythia.com/
Instagram: https://www.instagram.com/shelbyforsythia/
Facebook: https://www.facebook.com/shelbyforsythia/
Free Podcast: https://www.shelbyforsythia.com/dear-grief-guide-podcast
Free Workshop: https://www.shelbyforsythia.com/free-workshop
Book, Your Grief, Your Way: https://www.shelbyforsythia.com/your-grief-your-way
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
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Dementia practitioner Mary Anne Oglesby-Sutherly is on a mission to transform the landscape of dementia care. As co-founder of Veranda Ministries, a 501(c)3, Mary Anne has spent two decades telling the stories of people dealing with dementia. Supporting dementia caregivers is her gift, and helping them to remember their person’s legacy is a top priority.
Mary Anne got her start as a family practice nurse, and is now a Certified Dementia Practitioner as well as holding a triple certification as a PAC trainer, consultant, and coach in Teepa Snow’s “Positive Approach to Care” (PAC). As the host of the highly acclaimed podcast, “Aging Angst and Alleluias,” Mary Anne provides invaluable support, education, and encouragement to care partners navigating the intricate journey of dementia care. The care Mary Anne and her team provide through Veranda Ministries recalls the personhood of their patients, validating who they are and promoting their dignity. What an amazing work and life legacy Mary Anne is creating for herself and her family.
Here’s how you can connect with Veranda Ministries:
www.theverandaministries.org
Proactive Perspective in Dementia Care Facebook:
https://www.facebook.com/profile.php?id=61553996411093
Veranda Ministries Facebook:
https://www.facebook.com/TheVerandaMinistries
Veranda's Hidden Heroes Private Support Group on Facebook.
https://www.facebook.com/groups/1851833391499391
Listen to the Aging Angst and Alleluias podcast here.
Find all the resources that Barbara Karnes has to offer at bkbooks.com.
Purchase the End of Life Guideline Series Bundle here.
Find Barbara’s new booklet Always Offer, Never Force: Food at the End of Life here.
Read Barbara’s blog here.
Connect with Barbara Karnes on social media: Facebook Insta LinkedIn Twitter Pinterest YouTube
Order your copies of The Hospice Care Plan: A Path to Comfort here, now available in English and Spanish!
Check out the free library of video tutorials from the creators of The Hospice Care Plan hospice nurses Nancy Heyerman and Brenda Kizzire here.
Read more about Nancy and Brenda and their mission to improve hospice care here.
Find Odonata Care on social media: Facebook YouTube IG TikTok
Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.
Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].
- Visa fler
