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Dr. Horbinski sits down with me to discuss the complexities of brain tumors and how his work in the Feinberg School of Medicine lab is looking into mutIDH1 and how it dramatically alters the gliomaâs micro-environmental landscape by preventing the thrombosis-necrosis phenomenon that is characteristic of IDH1 wild-type gliomas. Furthermore, mutIDH1 increases the risk of seizures in patients. He explains why his team's work may improve diagnostic and prognostic accuracy.
For methylation profiling patient care and information, please send samples to: Northwestern Department of Pathology.
Season Sponsors:
GammaTile Therapy
Imvax Inc.
Episode Sponsors:
Highmark BlueCross BlueShield of WNY
Mimivax Inc.
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For all of Scott Hamilton's successes, there has also been sacrifice, fear, and loss. He has battled health issues that truly put death in front of him and has made him confront very hard truths. And, it was through his wife that he learned and felt the power of faith in God's word.
Scott doesn't see his life as lucky-he sees his life as a road map. All of his experiences teach him and have helped him navigate 4 pillars that are at the foundation of everything he does in life: emotional, physical, spiritual, intellectual living. He calls it "getting strong".
Staying rooted in his spiritual life has allowed Scott to stay humble, kind, patient, and has driven him to give back. Because of his own cancer battle, and the brain tumor he lives with, Scott founded Scott CARES Foundation, revolutionizing cancer care by funding cutting-edge research that focuses on treating the cancer while sparing the patient from harsh side effects associated with conventional cancer treatments. He also helped develop ChemoCare.com- a way for patient's to take back control of their chemo treatments and feel empowered.
Watch or hear (an extended version) of his story now! The video is on YouTube. The audio is available here on Podbean or anywhere podcasts are played!
Season Sponsors:
GammaTile Therapy
Imvax Inc.
Episode sponsors:
Stang Life Insurance
Alliance Advisory Group
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Saknas det avsnitt?
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Robert and Melanie Ham were young, with two young children when Melanie was diagnosed with an incurable rare form of Sarcoma in 2020. Robert, an award winning film maker and military veteran, decided he wanted to document her journey, their love, to help others.
The documentary aired in 2022 after Melanie's death and has been viewed more than 1 million times on YouTube.
Robert knew that a part of his grief journey included finding a way forward for himself and his children. That mean, not giving up on love and the lessons it teaches us. Enter Brooke. Brooke had been battling her own hard grief journey after her marriage ended in divorce. With two children of her own, Brooke had to find a way to balance single motherhood while also redefining what life was to look like for her. Brooke knew that she never wanted to give up on love, because a life without love is only half a life.
This is a story of love, of hope, of longing, of enduring memory. Listen now! Or watch the video episode on our YouTube channel.
Premier Sponsors:
GammaTile Therapy
Imvax Inc.
Episode sponsors:
Mimivax Inc.
Alliance Advisory Group
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Having glioblastoma doesn't mean life is over. In fact, it can be viewed as an opportunity! Tara McCaughan from Northern Ireland has been living with gbm for nearly five years.
Her story shows us how human resilience and internal cognitive reshuffling can be our biggest weapon in battling such a formidable disease. But she doesn't do it alone, her partner Stephen is her rock.
We need stories like hers! I sit down with Tara and Stephen to learn how she realigned her life after her diagnosis, and what motivates her today to see the beauty in her disease.
Season Premier Sponsors:
Imvax Inc.
GammaTile Therapy
Episode Sponsors:
Alliance Advisory Group
Mimivax Inc.
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There are so many facets of the grief and loss journey. One that many don't think of is financial understanding.
Whether it's starting a non-profit organization after a loss or trying to navigate investing from money left to you after a death, it's vital to know how to advocate for your own best interests. Self advocating is important in in all areas of life, not just in caregiving or physical health.
Today, I sit down with Frank Randall and Dan Schlein of Alliance Advisory Group to discuss the who, what, where, when, and why of financial advising and important questions people should be asking when meeting with a financial advisor.
Season Sponsors:
GammaTile Therapy
Imvax Inc.
Episode Sponsor:
Mimivax Inc.
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Grief is something that crashes into us. It takes a toll on us emotionally and physically. But when it does, it also teaches us. We grow from our journeys in life--the good and the bad.
Emily Peterson, CEO of Saranoni Luxury Blankets, knows this journey all to well.
Emily's husband Nathan was diagnosed with glioblastoma brain cancer just 3 months after launching their Saranoni Cares initiative for cancer patients, including brain cancer. Nathan, just in his early 50's, only had two months before the cancer took his life.
With six kids to care for, Emily hardly had any time to grieve. Hear her story only on Game ON Glio! Listen now.
Season Sponsors:
GammaTile Therapy
Imvax Inc.
Episode Sponsor:
Highmark BCBS of WNY
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Love is infinite. You don't run out of love. You don't stop loving your late spouse just because a "new and different love" introduces itself. Your heart grows around what was to make room for what is.
Annie and Matt teach us just that. In this episode, we sit down with the two to talk about finding love again after loss, and what it truly looks like to live life in the transitions.
Annie and Matt both have children and lost their late spouses early in life. Yet the universe found a way to bring these two together to create a second chapter in life. Listen to their inspiring story. Listen now!
Season Sponsors
GammaTile Therapy
Imvax Inc.
Episode Sponsor
Highmark Bluecross Blueshield of WNY
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Big Tree Memorial Fund, a 501c3 was started in honor of Erik Knapp who died from glioblastoma in his early 30's. The fund is unique in that it doesn't just focus on brain cancer, but any family suffering from hardship due to a cancer diagnosis. The fund helps supports families and caregivers through resource and financial assistance.
Erik was Lauren's best friend, and to honor his memory and the man he was, she could think of nothing better than finding a way to help others!
Lauren sits down with me in this wonderful friendly interview between two women who have such respect for each other, lifting and elevating each other, to discuss how brain cancer impacted her life through her best friend Erik Knapp and how the Big Tree Memorial Fund was started.
Listen now!! Please share with others. đ
Season Sponsors:
GammaTile Therapy
Imvax Inc.
Episode Sponsor:
Highmark Bluecross Blueshield of WNY
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There are people you meet in life, whether through words, groups, from a community or work that redefine how you interact with and see life. For me, it started with words; a little book I found one rainy Sunday morning at the bookstore-- Be Like Water. I flipped through this tiny paperback, it's first sentence reading, "More than 70% of the Earth's surface is water. Every living thing is composed of water." I was intrigued so I bought it. Little did I know that book would help me through some difficult times in my life. Whether finding my center, conquering fear, channeling my energy or freeing my mind of anger and guilt. So back to the store I went and purchased his other book that I relied on heavily, Bow to Life.
Dr. Cardillo is a best-selling author in the fields of health, mind-body-spirit, and psychology. His books, which include The 12 Rules of Attention: How to Avoid Screw-ups, Free Up Headspace, Do More and Be More at Work; Body Intelligence - Harness Your Body's Energies for Your Best Life; The Five Seasons; Your Playlist Can Change Your Life; Can I Have Your Attention? How to Think Fast, Find Your Focus and Sharpen Your Concentration; Bow to Life; and the body-energy classic, Be Like Water have inspired people of all ages and backgrounds worldwide. Foreign language editions of his work have appeared in German, Russian, Portuguese, Spanish, French, Arabic, Turkish, Chinese, Korean, Japanese, Malaysian, and Indian.
He co-writes books for Harvard Health Publications. Joseph teaches workshops in Health and Wellness at various colleges and institutions. He is a Research Associate at the Mind-Body Science Institute and writes a health column for Live Happy Magazine. He is a black belt martial arts specialist and a master teacher of Chinese and Filipino martial systems and philosophy.
Podcast: Available Now!đStream, watch, or listen here: https://thegameongliopodcast.podbean.com/
I hope you guys enjoy this! đ If you enjoy this video, Please like, Comment and share it. PLEASE leave us a review on any podcast platform đ Don't forget to subscribe to this channel for more updates. đ Subscribe now: https://www.youtube.com/channel/UCR3RxfGgBJ79-mrEctD8vmw This episode is sponsored by Highmark Bluecross Blueshield
This season is sponsored by:
GammaTile Therapy (learn more at gammatile.com)
&
Imvax Inc. (imvax.com)
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How can you comprehend become a widower at 35 years old after 16 years with the one you love? How do you make sense of losing that spouse (only 33) 11 months after giving birth to your first child?
This is exactly what Alan Johnstone faced when his young 33 year-old healthy wife Anneka was diagnosed with glioblastoma five months after giving birth to their daughter Sienna. Six months after diagnosis, Anneka was gone. Sienna not even one year old.
Game On Glio traveled to Boston Massachusetts to spend some time with Alan, his daughter, Anneka's mother as well as Alan's mother (both of whom are absolutely lovely and a joy to be with) and dive into his story. And we were there to cheer him on!
Hear this amazing story and how brain cancer brought a man from Scotland here to the States to run the Boston marathon for brain cancer.
(Read more of this story on our website thegameongliopodcast.com)
Season Sponsors:
GammaTile Therapy
Imvax Inc.
Episode Sponsor:
Roon.com
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To kick off brain cancer awareness month 2024, I sit down with Roon app creators Rohan Ramakrishna & Vikram Bhaskaran in episode 1 of Season 4 of The Game On Glio Podcast.
We dive into the importance of real time information and the need for advocacy when it comes to serious diseases like Glioblastoma. My guests also explain why they felt the need to create an app like Roon.
The Roon app offers people an opportunity to get extensive information from actual clinicians and doctors, to search for questions they didn't get to ask with their own personal doctors, and to hear from mental health experts, patients, caregivers, and holistic practitioners.
Season Sponsors:
GammaTile Therapy
Imvax Inc.
Episode Sponsor:
Roon.com
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When Eric Wood sat in a delivery room supporting his wife as she gave birth to their child, he didn't expect to find out that his NFL career was over. It was 2018 and the middle of the football season; Wood had played his entire career for the Buffalo Bills football team, but his path there was narrow and included a bit of destiny. Wood knew full well how fortunate he had been, especially since he had already seen loss and challenges in his life. So, when another challenge knocked at his door, Wood rose to the challenge and overcame it.
In this episode, Wood sits down with me to talk about tips to help overcome challenges, gain confidence and what it really means to "win" (hint: it's not what you think). We also discuss the importance of being grounded in life and in relationships and how his faith carries him through life.
This is a powerful holiday episode you won't want to miss.
**extended audio version. For video, visit our YouTube Channel.
Season Sponsors:
GammaTile Therapy
Imvax Inc.
Episode Sponsor:
UBNS (UB Neurosurgery)
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In this episode, Kate sits down with me to discuss the power of hope, faith, family, and never giving up--even when you think all hope is lost.
Her foundation, Hope Rises, shares hope-filled news every single day, as well as hosting powerful giveback projects. To date, they have raised over $300,000+ and change countless lives through charitable efforts of love which include the Shine Gold fundraiser for pediatric cancer and fundraising for veterans at WNY Heroes.
Learn more and find out how you can donate to Hope Rises by visiting our website thegameongliopodcast.com
You can listen to this episode or watch it over at our YouTube channel (Game On Glio Podcast).
This season is sponsored by GammaTile Therapy and Imvax Inc.
Episode 11 is sponsored by UBNS
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When Amber Jackson met her husband Tim, she describes it, "He came across my sky and lit it up, and now he's gone just as quickly."
Amber and Tim were both nurses at the same hospital, and very quickly realized they were soulmates and meant to be together. Within five years they got married and had two beautiful kids.
Then it all came crashing down when Tim was diagnosed with brain cancer.
Amber shares her story of resilience, caring for 4 small children, one of whom has special needs, and navigating being single while carrying space as a young widow.
Listen now!
Season Sponsors: GammaTile Therapy, Imvax Inc.
Episode Sponsor: UBNS
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At the time of his diagnosis, Chris Baccash had a full time analytics job and spent his weekends racing and training with the Doylestown Bike Works elite cycling team. His accomplishments included the hardest event of the season â the 50-mile Bucks County Classic, in his hometown of Doylestown, PA, with a personal-best time.
Of cycling at the time, Chris says, âWhen else do you get to ride through a beautiful countryside, side by side with a good friend, and have an uninterrupted conversation for five hours?â
After being diagnosed with brain cancer, his perspective on what was important in life changed, âI knew that my situation was going to take a while to get corrected and I would have a chance to reprioritize,â he said. âItâs rare that we get these opportunities to pause and stop the show. I thought, âThis is an opportunity to change my life.'"
And that is what he did. Hear Chris's remarkable story and what he is doing today.
Listen now!
Season Sponsors: GammaTile Therapy, Imvax Inc.
Episode Sponsor: UBNS
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It's hard enough to imagine a young adult getting glioblastoma. But to hear of a baby having it truly tugs at the heart strings.
Kelly Barnhart shares her incredible story with us of her 5 year old son Carson's GBM story.
A mother of three, a wife, and an educator in the Buffalo school system as well as through Buffalo Hearing and Speech, Kelly has made it her mission to share Carson's pediatric cancer story to highlight congenital glioblastoma.
Listen now!
Season Sponsors:
GammaTile Therapy
Imvax Inc.
Episode Sponsor:
UBNS
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It's an old phrase, one that has actually been around since the 11th century when Saint George slayed his first "dragon." The more recent old English proverb is "Some days you get the bear, some days the bear gets you." Basically we win some, we lose some--BUT we always keep going, and we slay one dragon at a time.
That is life; life throws us curve balls and all we can do is wait for the next pitch and hope we connect in a positive and meaningful way. And, that's exactly what our guest today has done.
Laura Dill is the founder of the Slay Society Inc., a charity that promotes a healthy experience for caregivers and those living with Glioblastoma by providing funding to families, and access to counseling, information, and group programs to individuals with Glioblastoma, their families.
Listen now!
Season Sponsors:
GammaTile Therapy
Imvax Inc.
Episode Sponsor:
UB Neurosurgery
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StacheStrong is a 501(c)3 non-profit devoted to raising funds and awareness for brain cancer research in memory of the late GJ Gerner--Co Founder Colin Gerner's brother. The organization has become a beacon of hope for countless individuals and families afflicted by brain cancer.
In this episode, Colin recalls, âIt all started with a seizure. My 29 year old brother had a seizure. We figured, well we hoped, that it was just dehydration--you know something minor. I followed the doctor into the hallway and it was no longer a question â he told me they had found a large brain tumor. â
Listen to Colin's powerful story.
Season Sponsors:
GammaTile Therapy
Imvax Inc.
Episode Sponsor:
MimiVax LLC
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Mike was diagnosed with glioblastoma in April of 2022. 13 months in, he is doing well and stronger than ever--but it comes at a price.
âI know the statistics,â he said. âThe statistics for glioblastoma are a median survival of 14 months; half the people are dead by 14 months. The five-year survival is four or five percent.â
Mike found the tumor after a seizure while driving home led to a car crash. He woke up in the hospital with a broken back, but it was his brain scans that would change his life. Ironically, Mike works in neurological medical device sales, and his wife is a clinical research analyst. So, when he saw his scans, he knew it was cancer but never would have thought it was GBM.
Hear his remarkable story.
You can watch a special video of our guest singing an acoustic version of "My Little Girl" with country singing legend Tim McGraw.
**Book referenced can be found on our website thegameongliopodcast.com
Season Sponsors:
GammaTile
Imvax Inc.
Episode Sponsor:
MimiVax
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In this episode, we talk to Wade Lewis who was diagnosed with glioblastoma at the age of 43. Faith, fortitude, and fight all describe what this episode is about.
Wade shares his brain cancer journey, the intriguing friendship he developed with Dr. Fonkem and how it led to their work in Africa together, and how ministry and his belief in God has given him a new outlook on the path that has been handed to him. We also discuss some interesting drug news that isn't on everyone's radar.
Listen now! Please review or rate us anywhere podcasts are played. We love to hear from you! Also visit our website for updated clinical trials that are recruiting and updated brain cancer news.
Visit our YouTube channel for the latest special videos and a documentary trailer on Wade Lewis's journey so far.
Season Sponsors:
GammaTile Therapy,
Imvax Inc.
Episode sponsor:
Highmark BlueCross BlueShield
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