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Dr. Thomas Su on Awake 360° Lipedema Liposuction, Staging, Recovery, and Insurance ChallengesHosts Cindy and Kristy introduce Dr. Thomas Su of Art Lipo in Tampa. Dr. Su describes training in internal medicine, a fine arts background, and 20 years specializing in circumferential, high-definition arm and leg liposuction, evolving from cosmetic work to lipedema cases starting around 2017.
He explains why he prefers awake, office-based procedures using local anesthetic and nitrous oxide, notes lipedema “staging” reflects size more than symptom severity, and outlines how larger cases may require multiple surgeries or hospital-based large-volume surgeons.
He details his photo-based consult process with hand-drawn visual “renders,” typical recovery marked by swelling for months, a ~3-month minimum between blended leg procedures, two-week minimum compression (provided by his office), selective use of MLD for severe swelling, and ongoing insurance denial tactics despite pending coding changes.00:00 Show Introduction00:55 Sponsor Message01:42 Meet Dr Thomas Su03:49 Training And Credentials06:46 Circumferential Technique07:42 Stages And Case Limits13:42 Awake Office Surgery16:32 Why Lipedema Work20:50 Loose Skin Challenges22:26 Complete Removal Skills25:43 Consultation Process26:25 Visualizing New Shape28:44 Surgery Staging Strategy30:52 Insurance Coverage Reality37:44 Recovery and Swelling40:08 Timing Between Procedures42:10 Compression Guidelines47:28 MLD and Fibrosis Debate50:03 Advice and Farewell
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IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPHC
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
https://www.instagram.com/stronger_than_lipedema_podcast/
This episode is proudly sponsored by Lipoelastic Compression
Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.
https://www.instagram.com/lipoelastic_usa/
https://www.instagram.com/lipoelastic/
https://artlipo.com/https://www.instagram.com/artlipo_lipedema_surgery/https://www.facebook.com/ArtLipoLipedemaSurgery/https://www.tiktok.com/@artlipo_lipedema_surgery
https://www.youtube.com/channel/UCNh7wlWroshm5vVwbWNfExQ
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Lipedema, Vascular Health, and Women’s Advocacy with Dr. Czestochowa FrancoisHost Cindy welcomes Dr. Czestochowa Francois, an emergency and vascular medicine physician, to discuss her path into lymphatic and venous medicine and her personal connection to lipedema through a family member.
The conversation highlights how lipedema is often underdiagnosed or misattributed to obesity, aging, menopause, or diagnoses like fibromyalgia, and stresses the importance of clinicians learning alongside patients rather than dismissing them.
They discuss comorbidities and evolving medical knowledge, the challenges of accessing care and creating documentation “paper trails” for treatment, and the expense of managing lipedema.
Cindy shares frustrations navigating BHRT and feeling unheard, while Dr. Francois emphasizes whole-body interconnected systems, the need for supportive provider relationships, and patient self-advocacy.
She closes with a message that symptoms are real, stress can worsen conditions, and community support and kindness to one’s body matter.00:00 Welcome to the Podcast01:39 Meet Dr Francois02:56 Personal Link to Lipedema03:54 Comorbidities and New Frontiers06:25 Gaslighting and Finding Care08:05 Triggers and Misdiagnosis11:32 Women’s Health Funding Gap14:01 BHRT and Screening Dilemmas20:38 Choosing the Right Provider25:56 Why Vascular Medicine30:56 Seeing More Lipedema Patients31:25 Training Through Experience32:09 Building a Care Village32:52 Access Gaps and CLT34:06 Community and Research Push36:06 Paper Trails for Coverage38:04 Clinical Diagnosis Basics38:28 Whole Body Systems43:40 Kindness After Pregnancy48:23 Women Supporting Women50:32 Listening for Hidden Symptoms53:45 Finding the Right Doctor55:49 Where to Find Care56:51 Physician Message to Women58:45 Episode Wrap and Next Steps
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IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPHC
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
https://www.instagram.com/stronger_than_lipedema_podcast/
This episode is proudly sponsored by Lipoelastic Compression
Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.
https://www.instagram.com/lipoelastic_usa/
https://www.instagram.com/lipoelastic/
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Saknas det avsnitt?
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Dr. Nicole Kramer on 33 Years of Misdiagnosis, Medical Gaslighting, and Finding Answers with LipedemaHosts Cindy andKristy welcome Dr. Nicole Kramer, a clinical psychologist and “fellow lippy lady” diagnosed with stage 3 lipedema at 43 after decades of misdiagnosis and dismissal, despite being seen at major medical centers.
She shares early signs in childhood, progression during hormonal shifts and stress, and how a community hospital lymphedema clinic director finally identified her textbook lipedema, later confirmed by Dr. Herbst.
The conversation covers medical uncertainty, obesity stigma, systemic pressures that reward physician certainty, and how the lack of U.S. ICD-11 adoption and billing codes contributes to poor recognition and insurance barriers.
Dr. Kramer discusses treating the experience as trauma, the importance of advocacy and community, and her lipedema reduction surgeries with Dr. Volshteyn (legs and arms, with another upcoming), pursued largely due to declining mobility. She also shares her Substack, Beyond Zebras, focused on navigating misunderstood conditions.00:00 Welcome to the Podcast00:55 Sponsor Message01:42 Meet Dr Nicole Kramer03:23 Her Lipedema Journey06:57 Dismissed by Experts08:59 Accident and Rehab10:53 Finally Diagnosed13:58 Why Doctors Miss It16:10 ICD Codes and Coverage18:16 Beyond Zebras Framework21:50 Seeing Lipedema Everywhere23:48 Medical Gaslighting Impact25:59 Doctor Culture and Certainty28:00 Doctors Under Pressure30:30 Sick Care Reality Check31:22 Diagnosis Doubt and Gaslighting33:21 Trauma and Coping Tools38:16 Lipedema Surgery Journey40:35 Insurance and Access Barriers43:13 Mobility and Legal Advocacy45:18 Teaching Providers and Power Dynamics49:19 Hormones and Women's Health Gaps51:18 Where to Connect Next52:28 Final Episode Wrap
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Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPHC
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
https://www.instagram.com/stronger_than_lipedema_podcast/
This episode is proudly sponsored by Lipoelastic Compression
Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.
https://www.instagram.com/lipoelastic_usa/
https://www.instagram.com/lipoelastic/
Dr Kramer's main outlet is on Substack: https://beyondzebras.substack.com/https://www.instagram.com/drnicolekramer/
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Hosts Cindy and Kristy, welcome guest Lisa Duerre, a CEO of RLD Group a leadership alignment consulting firm, and lipedema advocate.
Lisa shares being late-diagnosed in 2022 after losing mobility and using a scooter, learning about lipedema from her stepmom’s research, and rebuilding her health through conservative therapies, including swimming and wheelchair assistance during airport travel.
She discusses advocating through storytelling rather than directly labeling others, the benefits and risks of social media, and frustrations with limited access to CLT/CDT/MLD care, long waitlists, and out-of-pocket costs.
Lisa recounts a planned Germany surgery canceled due to anesthesia safety concerns tied to BMI and cardio capacity, prompting weight loss and a reassessment of surgery. She emphasizes small actions, community support, requesting help, workplace accommodations, anti-fat bias resources (NAAFA, Aubrey Gordon), and notes research citing a high correlation between lipedema and ADHD.00:00 Welcome to the Show01:39 Meet Lisa Duerre03:09 Late Diagnosis and Mobility05:00 Stepmom Sparks Discovery06:40 How to Tell Others10:57 Social Media and Scams14:02 Surgery Plans Canceled17:34 Getting Diagnosed Locally20:43 Finding MLD and CDT Care24:43 Small Steps and Resilience27:57 Asking Family for Help32:04 Knee Pain Misdiagnosis33:24 Caregiver Perspective Shift34:58 Advocating Travel Needs37:24 Accessibility In Seating41:14 Airline Policies And Bias43:09 Anti Fat Bias Resources45:34 Community And Burnout47:39 Finding Gifts In Diagnosis50:51 ADHD Link And Superpower54:36 Closing And Where To Find Lisa56:18 Episode Wrap Up
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Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPHC
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
https://www.instagram.com/stronger_than_lipedema_podcast/
This episode is proudly sponsored by Lipoelastic Compression
Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.
https://www.instagram.com/lipoelastic_usa/
https://www.instagram.com/lipoelastic/
LinkedIn: https://www.linkedin.com/in/lisaduerre/YouTube: https://www.youtube.com/@realtalkwithlisaSpeaking Page: https://www.lisaduerre.com/lipedema-advocacy/RLD Group: https://rldgroupllc.com/Instagram: https://www.instagram.com/lisa.duerre/Facebook: https://www.facebook.com/lisa.duerre -
Understanding the Lymphatic System, MLD, and Early Lipedema Support with Carmen of Monarch Continuing EducationHosts Cindy and Kristy welcome Carmen, director and owner of Monarch Continuing Education, who shares her background in physical therapy and massage therapy and how discovering manual lymph drainage (MLD) led her to become a certified lymphedema therapist and eventually create accredited training programs to expand access to care, especially in rural areas.
Carmen explains why lymphatic education isn’t mainstream, gives a simple overview of the lymphatic system’s role in moving and filtering interstitial fluid, and discusses signs of lymphatic issues and early lipedema indicators. She recommends practical ways to support lymphatic health, emphasizing movement, reducing toxins, and tracking habits and symptoms.
Carmen clarifies why MLD is light yet effective, its role in maintenance, and shares a multigenerational lipedema case highlighting early intervention benefits. She also provides resources at monarchce.com.00:00 Welcome to the Show00:55 Sponsor Message01:42 Meet Carmen02:02 From Clinician to Educator06:04 Why Lymphatics Are Overlooked10:47 Lymphatic System Explained15:03 Signs of Lymphatic Trouble18:10 Simple At Home Support20:53 Tracking Habits and Symptoms25:34 Manual Lymph Drainage Basics29:42 MLD for Wellness and Fitness34:37 Three Generation Lipedema Story39:59 Resources and Where to Find Carmen41:07 Conference Talk and Progress42:20 Final Thoughts and Goodbye
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Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPHC
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
Podcast IG:https://www.instagram.com/stronger_than_lipedema_podcast/
This episode is proudly sponsored by Lipoelastic Compression
Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.
https://www.instagram.com/lipoelastic_usa/
https://www.instagram.com/lipoelastic/
Monarch Continuing Education:https://www.monarchce.com/
Email: [email protected]
https://www.facebook.com/MonarchCE/
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Cindy and Kristy welcome Dr. Grace Villaver from Levelupptdoc.com
7:45 — Lipedema fat is metabolically different and causes inflammation, muscle inhibition, and joint damage beyond just added weight. Even small amounts of joint swelling can significantly reduce muscle recruitment.8:54 — Lipedema fat is metabolically distinct and creates a different kind of inflammation in the body.16:24 — Custom compression garments are more effective and improve compliance — especially for patients with asymmetrical body shapes or sensitivity.31:59 — Surgery is a valid option for many women — but vetting surgeons and having realistic expectations (including the possibility of deeper nodules becoming more visible post-surgery) is critical.43:15 — CDT (Complete Decongestive Therapy) is the gold standard for lipedema management and includes MLD, compression, exercise prescription, and skincare.44:52 — Your body is not failing you — it has been failed by a system that wasn't built to understand it.Connect with Dr. Grace Villaver:
Website: levelupptdoc.comEmail: [email protected]: Leesburg, Northern Virginiahttps://www.instagram.com/levelup.therapy/Sponsor:This episode is sponsored by Lipoelastic — compression garments designed specifically for patient comfort and support. Use code STLpodcast for 10% off your order. Link in show notes.
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Lipedema Literacy, Surgery Realities, and Trusted Resources with Kasi GrosvenorHosts Cindy and Kristy welcome back Kasi Grosvenor, a project manager at the Lipedema Foundation, to discuss her lipedema journey, the way pain and functional limitations can be normalized, and how functional capacity evaluations may reveal hidden impacts—especially when conducted by clinicians familiar with lipedema.
Kasi shares that she was diagnosed about five years ago (stage 2–3), has used conservative therapies since diagnosis, and has undergone five removal-related procedures (including brachioplasty, abdominoplasty, and low-volume liposuction), emphasizing surgery as a reset—not a cure—requiring ongoing daily management.
The conversation covers comorbidities (including mast cell activation syndrome, hereditary alpha-tryptasemia, hypermobility, perimenopause), the slow progress toward ICD coding, and Lipedema Awareness Month’s focus on “lipedema literacy,” urging patients to seek vetted resources like lipedema.org, provider directories, print brochures, and the Legato Library.00:00 Welcome to the Podcast00:55 Sponsor Message01:42 Meet Casey Grosvenor02:34 Kasi’s Diagnosis Story04:35 Normalizing Pain and Limits05:30 Functional Capacity Testing10:12 Finding the Right PT or OT14:43 Life After Five Surgeries17:32 What Areas Were Treated19:08 Regrowth and Fibrosis Tools23:14 Habit Stacking at Home26:08 Comorbidities and Connections30:10 Hypermobility and Early Signs31:34 Aging With EDS Challenges32:43 Grassroots Awareness Materials34:44 Billboards And Viral Moments36:27 ICD Codes And Policy Progress41:58 Patient And Foundation Perspective44:26 Awareness Month Literacy Push47:04 Elevator Pitch For Lipedema49:41 Obesity Bias In Healthcare52:49 Trusted Resources And Legato
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IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPHC
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
This episode is proudly sponsored by Lipoelastic Compression
Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.
https://www.instagram.com/lipoelastic_usa/
https://www.instagram.com/lipoelastic/
Lipedema Foundation Website: https://www.lipedema.orgAccess Lipedema Awareness Month Resources: https://www.lipedema.org/lipedema-awareness-month-2026Join the Lipedema Foundation Newsletter: https://lipedema.org/contact-us Educational Resources: https://www.lipedema.org/educational-resourcesFollow Lipedema Foundation on Social Media: Facebook, LinkedIn, Instagram, X, TikTok, and YouTubeExplore the Lipedema Research Library (LEGATO): https://www.lipedema.org/libraryAccess Treatments Resources: https://www.lipedema.org/treatmentsFind a Lipedema Provider: https://www.lipedema.org/provider-directoryKasi Grosvenor
https://www.instagram.com/kasi.grosvenor/
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Cindy welcomes registered dietitian Jean LaMantia, a Canada- and US-registered practitioner, cancer survivor, and author, to discuss lipedema, lymphedema, and nutrition.
Jean shares how a lymphoma diagnosis at 27 led her to focus on the lymphatic system and later work with lymphedema and lipedema clients.
She highlights her books on cancer nutrition, lymphedema (with a therapist co-author), intermittent fasting, and complementary therapies, plus lipedema self-care journals.
The conversation emphasizes evidence-based guidance amid nutrition misinformation, tracking symptoms to identify triggers, and focusing on “non-scale victories” like pain and function rather than weight loss.
Jean explains gut-lymph connections, notes frequent IBS-like symptoms, and recommends anti-inflammatory eating tailored to the individual.
Listeners can find resources and a free consult at JeanLamantia.com.
00:00 Show Introduction
00:55 Sponsor Message
01:42 Meet Jean La Mattina
02:23 Cancer to Lymphatic Awakening
04:29 Why Lymphatics Matter
07:07 Books and Resources
09:50 Tracking Symptoms With Journals
13:56 Nutrition Career Origins
17:26 Career Path to Lymphedema
20:34 Evidence Over Fads
23:30 Nutrition and the Lymphatic Gut Link
26:21 Gut First Strategy
27:27 Personalized Nutrition Reality
28:21 Anti Inflammatory Basics
30:22 Tracking Symptoms Signals
31:45 Progression Debate Genetics
33:54 Edema Controversy Care
36:07 Medical Gaslighting Fight
39:33 Awareness Social Media4
1:21 Early Screening Teens
44:40 Why Diets Feel Like Failures
48:46 Non Scale Victories
49:27 Advice Resources Wrap
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Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPHC
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
This episode is proudly sponsored by Lipoelastic Compression
Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.
https://www.instagram.com/lipoelastic_usa/
https://www.instagram.com/lipoelastic/
Follow Jean Lamantia https://www.facebook.com/jean.lamantiahttps://jeanlamantia.com/
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Guest: Dr. Meegan Gruber, Board-Certified Plastic Surgeon, Tampa, FL
Episode Highlights & Timeline
[1:42] – Meet Dr. GruberDr. Gruber introduces herself: 25 years in plastic surgery, ~10 years specializing in lipedema awake surgery based in Tampa, FL.
[2:40] – Groundbreaking Research: University of Virginia StudyDr. Gruber announces an upcoming collaboration with Dr. Karol Gutowski at UVA to study lipedema at the molecular level – examining why lipedema cells behave the way they do. Surgeons like Dr. Gruber will contribute tissue samples (with patient consent) to help uncover what's happening at the cellular level.
[4:54] – How Dr. Gruber Got Into Lipedema SurgeryShe shares how working with Art Lipo in Tampa exposed her to lipedema patients organically – they "came with the territory" of arm and leg procedures.
[9:10] – Lipedema Surgery vs. Standard LiposuctionKey differences: lipedema fat is "hungrier" and more likely to regrow if not fully removed. Surgical planning must account for long-term behavior of remaining fat, especially in younger patients.
[13:38] – Florida's 4-Liter Fat Limit ExplainedA clear breakdown of the 4-liter fat rule: it refers to extracted fat, not total aspirate (which includes fluid). Hospital-based procedures allow up to 10 liters. Recovery scales exponentially with volume removed.
[22:33] – What Awake Surgery Actually Looks LikeStep-by-step walkthrough of the awake lipo + lift procedure for arms. Custom numbing fluid (with ropivacaine for 8-hour relief), no general anesthesia, and an interactive, patient-centered experience – "somewhere between the dentist and a spa."
[35:10] – Splitting Up Surgeries: Lowers, Uppers & LiftsHow Dr. Gruber stages procedures by body weight, area, and goals. Legs typically require 2–3 separate sessions spaced at least 3 weeks apart.
[36:23] – Post-Op Follow-Up & Traveling PatientsNext-day follow-up for garment fitting, negative pressure bandages, and how Dr. Gruber supports out-of-state patients with a direct line and nationwide colleague network.
[51:10] – Why Awake Surgery Delivers Better Aesthetic ResultsThe real advantage: patients can stand up, flex, and point their toes during surgery, allowing Dr. Gruber to assess anatomy, correct asymmetry, and achieve a refined look impossible to achieve when a patient is under general anesthesia.
[1:01:04] – Insurance: The Honest TruthDr. Gruber doesn't take insurance but helps with prior authorizations and letters. One patient successfully got 100% coverage by writing to her state senators. Discussion on "sick care society" and the challenge of accessing lipedema surgery.
Follow us on Social media!!!
Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPHC
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
This episode is proudly sponsored by Lipoelastic Compression
Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.
https://www.instagram.com/lipoelastic_usa/
https://www.instagram.com/lipoelastic/
Resources & Links
Website: www.drmeegangruber.com YouTube & Instagram: @DrMeeganGruberTLC Show: Awake Surgery — streaming on Hulu, Discovery+, and Paramount+ (includes a lipedema patient episode)https://www.facebook.com/meegan.gruber -
Samantha’s Lipedema Journey: Self-Diagnosis, Insurance, Surgery, and Sharing the Lived ExperienceHosts Cindy and Kristy welcome Samantha, a 38-year-old Oklahoma public school administrator and mom of two, to share how she recognized body differences starting in seventh grade (first in her arms) and later in her legs, faced family criticism, and eventually self-diagnosed lipedema after developing severe autoimmune-like symptoms following breast implants and being dismissed by her surgeon.
She recounts realizing her wedding photos had been photoshopped, pursuing official diagnoses in Oklahoma (including Dr. Ryan Morgan and PT documentation), and using conservative measures like vibration plates, manual lymphatic drainage, and pneumatic compression.
After a three-year insurance process and multiple failed surgeon consults, she chose surgery with Dr. Azouz in Dallas to prevent progression, detailing four procedures in 2025 (legs, arms with brachioplasty, mini tuck/trunk, and thigh/calf/knee lifts) and recovery challenges.
Samantha now advocates on TikTok by documenting real surgical realities and building community.00:00 Welcome to the Show00:55 Sponsor Message01:42 Meet Samantha02:27 Early Signs in Middle School05:37 Family Reactions and Early Legs Changes07:08 Implants and Autoimmune Spiral08:16 Researching and Finding Lipedema12:54 Wedding Photoshopped Wake Up Call15:44 Diet Exercise and Progression19:40 Getting an Official Diagnosis21:45 Insurance Proof and PT Tracking22:51 At Home Conservative Treatments27:30 Choosing Surgery and Consult Setbacks30:58 Surgeon Search Roadblocks32:05 Finding Dr Azouz33:46 Supportive Diagnosis Moment35:22 Insurance Packet Strategy38:15 Four Surgery Breakdown40:38 Recovery Complications42:00 Life After Pain44:32 Advocacy on TikTok50:24 Beyond Before After Photos58:54 Where to Follow Samantha01:00:38 Episode Wrap Up
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Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
This episode is proudly sponsored by Lipoelastic Compression is key in managing lipedema — and finding pieces that are both supportive and comfortable makes all the difference.
Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.
https://www.instagram.com/lipoelastic_usa/
https://www.instagram.com/lipoelastic/Follow Samantha on Social Mediahttps://www.tiktok.com/@samanthawlipedema?lang=enYouTube @samanthawlipedema https://www.instagram.com/samanthawlipedema/
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Connecting Estrogen Metabolism, MTHFR, and Fibrosis in Lipedema with Carla HortonHosts Cindy and Kristy interview nurse practitioner Carla Whorton, who presents findings from her 112-page mechanistic integrative review proposing a unifying model linking lipedema with other estrogen-related fibrotic disorders via the 16-hydroxy estrogen–TGF-beta–mTOR axis. Drawing on her ICU background and experience as a breast cancer and lipedema survivor and mother of a survivor.
Carla explains how methylation polymorphisms such as MTHFR can impair estrogen detoxification, increasing proliferative metabolites (especially 16-hydroxy) that bind estrogen receptors, drive inflammation, activate TGF-beta, chronically stimulate fibroblasts, inhibit normal fibrosis breakdown, and suppress AMPK leading to mitochondrial dysfunction, insulin resistance, fatigue, pain, and liver burden.
She discusses puberty, pregnancy, and surgery as overload triggers, stresses monitored, individualized methylation and hormone balancing, and notes fasting/keto may raise cortisol in lipedema due to reduced metabolic flexibility.00:00 Welcome to the Show00:55 Sponsor Message01:42 Meet Carla Horton04:08 Research Thesis Overview05:18 Why Pathways Connect06:54 Dutch Test Walkthrough07:30 Progesterone and Symptoms10:15 Testosterone and Metabolism11:17 Three Estrogens Explained14:53 Estrogen Detox Pathways16:51 Methylation Trash Analogy18:34 Hypoxia and Fibrosis Link19:30 16 Hydroxy on Receptors21:16 Microtrauma and Mast Cells22:54 TGF Beta Takes Command24:35 Acute vs Chronic Fibroblasts26:14 MMPs vs TIMPs Breakdown27:39 Hormone Overload Explained28:48 Puberty Pregnancy Triggers31:26 MTHFR Testing Gap34:28 Folate Brain Chemistry Links36:39 Homocysteine Clot Risk38:53 Methylation Treatment Cautions43:15 Mitochondria and TGF Beta47:20 Surgery Plus Restoration50:54 Finding Care and Resources51:34 Fasting Keto Warning52:31 Episode Wrap Up
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IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPHC
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
Carla Whorton
https://www.instagram.com/carlawhortonnp/
https://www.facebook.com/carla.whorton.np
Sponsor: Lipoelastic
https://www.instagram.com/lipoelastic_usa/
https://www.instagram.com/lipoelastic/
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Integrating Obesity Medicine, Hormones, and Lipedema Care with Dr. Minnie Cruz StinoHosts Cindy and Kristy welcome Dr. Minnie Cruz- Tolentino, a double board-certified family and obesity medicine physician in Leesburg, Virginia, whose clinic has evolved into a metabolic practice integrating weight, hormones, and primary care with a multidisciplinary referral network.
She explains how increased awareness and more comprehensive exams led her to identify lipedema among patients who were compliant yet stalled on the scale, emphasizing that lipedema is a clinical diagnosis supported by detailed history and physical exam and guided, individualized lifestyle changes. Dr. Cruz highlights the importance of mental health support, avoiding information overload, and using vetted resources, plus referrals to dietitians and specialists.
She discusses observed benefits of GLP-1 medications (including tirzepatide) for lipedema-related inflammation and pain, often at low doses, and describes her women’s wellness approach that includes cardiovascular and metabolic prevention alongside hormone therapy.00:00 Show Introduction00:53 Sponsor Message01:44 Meet Dr Minnie Cruz03:07 Clinic Approach and Network04:14 Discovering Lipedema in Practice06:37 Screening and Clinical Diagnosis07:58 Nutrition Guidance and Referrals11:29 Lifestyle Change and Mental Health13:43 Diet Myths and DNA Insights18:03 Education and Trusted Resources19:11 Raising Physician Awareness21:49 Obesity Lipedema and Hormones25:47 Labs Insulin Resistance Autoimmune28:44 Shared Decision Testing29:26 Dutch Test Approach30:56 Hormones Weight Priorities32:54 Whole Body Wellness Plan35:19 Mental Health First39:09 GLP Ones Lipedema Relief41:14 Case Study Maintenance Dosing45:56 Misconceptions Next Steps49:03 Awareness Provider Education51:40 Contact Clinic Wrap Up
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IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPHC
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
Dr. Minnie Cruz-Tolentinohttps://www.instagram.com/mywellnessphysicians/
tel:7037779355https://www.mywellnessphysicians.com/
https://www.facebook.com/search/top/?q=mywellnessphysicians
Sponsor: Lipoelastic
https://www.instagram.com/lipoelastic_usa/
https://www.instagram.com/lipoelastic/
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Sarah Kitchens on Lipedema: Diagnosis, Advocacy, and a Multi-Surgery Journey with Dr. HagopianHosts Cindy and Kristy welcome Sarah Kitchens, a wife, mother of three, professor, and trauma-focused therapist, to discuss her lipedema journey.
Sarah believes symptoms began around age 9–10 but she wasn’t diagnosed until 40 after discovering lipedema on social media; she then pursued research, sought medical referrals (including MLD), and obtained an official diagnosis with Dr. Byrd.
She describes years of body-image struggles, disconnection from her body, and confusion from being told to “eat less, exercise more,” and how diagnosis brought relief and deeper empathy for clients.
Sarah details surgeries with Dr. Hagopian: Sept 2025 (10 liters from legs), Dec 2025 (3.5 liters from trunk plus fleur-de-lis abdominoplasty/panniculectomy), and March 2026 (12 liters posterior legs/back with spiral thigh lift), with a future arm surgery planned; she discusses wound risks, recovery challenges, insurance hurdles, costs, and the importance of strong family support, social media awareness, and persistent self-advocacy.00:00 Welcome to the Show00:56 Meet Sarah Kitchens01:32 Early Signs of Lipedema02:21 Finding Answers Online05:10 Mental Health Impact08:31 Diagnosis Journey11:41 Doctors and Advocacy16:10 Surgery Consult and Timeline20:18 Recovery and Wound Risks25:19 Choosing Surgery Despite Risks26:25 Sharing the Journey Online27:43 Anesthesia Confessions and Gratitude28:08 Insurance Battles and Costs34:52 Family Support During Recovery38:32 Recovery Realities No One Mentions41:15 Social Media Community and Awareness44:24 Advocacy and Educating Doctors46:58 Advice and Episode Wrap
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IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATBSarah Kitchens
https://www.instagram.com/sarah.lifelipedema/https://www.tiktok.com/@sarah.lipedema.unmasked
https://www.facebook.com/share/18ZSgTfLfn/?mibextid=wwXIfr
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Lippy Lymph Ladies: Lipedema, Lymphatics, Surgery Myths, and the Power of CompressionHosts Cindy and Kristy welcome Lisa, an occupational therapist and certified lymphedema therapist in Utah, who now focuses on outpatient manual lymphatic drainage and works with a lipedema removal surgeon.
Lisa shares how she transitioned from acute care during COVID to outpatient lymphatic care, learned to better identify lipedema, and created Lippy Lymph Ladies on Instagram/TikTok to provide accurate education amid social media misinformation.
She discusses common misconceptions: surgery isn’t a cure and conservative care must continue, diet and exercise don’t remove lipedema fat but still matter, and many patients struggle to get diagnosed and feel blamed. Lisa emphasizes validating patients that lipedema isn’t their fault, highlights the importance of the lymphatic system, and advises prioritizing proper medical-grade compression and consistency over trying every modality.00:00 Welcome to the Show00:56 Meet Lisa the Therapist02:54 Finding Lipedema in Clinic04:49 OT Talk and Hospital Life07:03 Lippy Lymph Ladies Origins10:12 Surgery Myths and Lymphatics12:53 Why Lisa Chose This Work16:29 Demand for Lymphatic Care19:55 You Are Not Crazy22:31 Diagnosis Struggles22:53 Guilt Shame Cycle24:40 Doctors GLP1 Debate26:38 Diet Exercise Nuance28:54 Nutrition Is Hard30:38 Fitness World Reality34:27 Not Your Fault38:13 Find Me Online40:12 Compression Matters42:32 Episode Wrap Up
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IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
https://www.instagram.com/lippylymphladies/https://podcasts.apple.com/us/podcast/lipedema-stories-podcast/id1841961157https://www.tiktok.com/@lippylymphladies
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Lipedema Surgery, Diagnosis, and Recovery: Dr. Xu of Virginia Plastic Surgery
Hosts Cindy and Kristy introduce Stronger Than Lipedema and interview Dr. Xu of Virginia Plastic Surgery about his training and focus on lipedema and lymphatic surgery.
He describes how lipedema was often missed or misattributed to weight, the need for education, advocacy, and research, and how he evaluates patients via comprehensive history and exam, sometimes adding venous studies or lymphatic imaging to rule out lymphedema, venous disease, or other causes of swelling.
Dr. Xu explains his consultation process (virtual and in person), licensing limits for insurance billing, and that his practice is currently cash-pay. He outlines his lipedema liposuction approach under general anesthesia using power-assisted lipo and a staged 270-degree technique, avoids VASER for legs, discusses potential skin-tightening devices, and details post-op compression and lymphatic massage, with options when CLTs are unavailable. He also discusses hyperbaric oxygen therapy, training with Dr. Jorjani, arm/leg scar placement considerations.00:00 Welcome to the Show00:56 Meet Dr Xu01:07 From Training to Practice03:10 Why Plastic Surgery04:08 Discovering Lipedema05:37 Misdiagnosis and Awareness08:13 Virginia Practice Overview09:13 Consultation and Diagnosis13:47 Virtual Visits and Licensing15:44 Costs and No Insurance16:38 Lipedema Surgery Breakdown20:45 Aftercare Compression and MLD22:18 Compression Wear Reality23:11 Pre Surgery Therapy Prep24:43 Finding MLD Help Fast25:46 Pneumatic Compression Timing26:56 Hyperbaric Healing Boost29:51 Training With Dr Jorjani30:33 Leg Technique And Staging32:39 Arm Surgery Scar Strategy36:27 Thigh Scar Placement Tips38:46 Artistry In Lipedema Lipo41:17 Advocacy And Personal Drive44:22 Final Thanks And Wrap Up
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IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
https://www.instagram.com/vaplasticsurgery/
https://www.virginiaplasticsurgery.com/
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Hosts Cindy and Kristy welcome Erika, also known as Trail to Health and founder of the Lipedema Summit, who shares her health journey from early signs of lipedema at puberty to a major flare after a 2016 stem cell therapy (using her own fat) pursued following years of severe, initially undiagnosed Lyme and other tick-borne diseases.
Erika describes rapid, hormonally linked weight gain, temporary relief from lymphatic drainage, and eight years of missed recognition by doctors before learning about lipedema through a gym acquaintance and an IV doctor, leading to a formal diagnosis in early 2024 and surgery in March.
She explains her motivation to educate others and outlines the patient-focused Lipedema Summit (June 10–12), featuring 60+ high-production interview-style sessions, free live access, optional replay/VIP Q&As, global experts, and an in-person LA event on June 11 with livestreamed Q&A, plus plans for an ongoing community.00:00 Welcome to the Show00:55 Meet Erika Schlick01:38 Early Signs and Puberty02:08 Tick Bite and Lyme Spiral02:33 Stem Cells and Weight Gain03:13 Searching for Answers04:32 Finally a Lipedema Diagnosis07:55 Why She Started Sharing09:31 Creating the Lipedema Summit12:43 Dates Passes and Access13:23 Who the Summit Helps14:50 Why Virtual Matters16:44 Sneak Peek at Speakers17:04 Speaker Lineup Highlights18:19 Practical Care Sessions18:32 How to Register19:12 Future Summits Community20:22 In Person LA Event21:32 Soft Landing Support23:03 Family Early Awareness26:40 Doctor Education Push27:54 Balancing Health Work30:25 Final Invite Wrap Up
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IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATBErika Schlick Contact information
https://www.instagram.com/lipedema.summit/
https://www.lipedemasummit.com/
https://www.facebook.com/erikaschlick
https://www.instagram.com/thetrailtohealth/
https://www.instagram.com/fullcirclemediaco/
https://www.instagram.com/thishealthylifepodcast/
https://www.facebook.com/lipedemasummit
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Hosts Cindy and Kristy welcome Sarah Cullen, a doctorate-prepared family nurse practitioner with 21 years of nursing experience, who opened Akeso Health & Wellness and the Akeso Lipedema Clinic.
Sarah shares how her own lipedema story, also affecting her identical twin drove her to create an integrative, education-heavy model featuring 90-minute intakes, individualized plans, extensive assessments, and a three-inch binder covering staging, compression, vein health, mental health, nutrition, exercise, hormones, supplements, and surgical options.
She discusses limited provider knowledge, building referral networks for traveling patients, offering Virginia telehealth, and operating outside insurance to avoid time caps while providing superbills and insurance support for equipment.
Sarah also recounts her self-pay 360 liposuction surgery after losing 70 pounds, the benefits and imperfections of outcomes, and collaboration with surgeon Dr. Kyle Xu.00:00 Welcome to the Show00:55 Meet Sarah Cullen01:58 Why Start a Clinic03:35 Building Lipedema Care06:12 The Education Binder11:34 Her Lipedema Story14:25 Learning to Treat It16:30 Referrals and Travel Patients18:09 Insurance and Time Based Care22:31 What the Eval Includes27:02 Patient First Care28:10 Team Based Empowerment29:29 Finding Real Support32:07 Saving For Specialists34:12 Avoiding Predatory Products37:26 Surgery Journey Breakdown40:13 Recovery And Results42:27 Twin Comparison Insights45:49 Loose Skin Decisions46:49 Local Specialist Network48:27 Clinic Mission And Name50:03 Advice And Wrap Up
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IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN, CLT, MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATBDr. Sarah Cullen, nurse practitionerhttps://www.akesohealthandwellness.com/https://www.instagram.com/akesohealthandwellness/
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Connie Boyer on Fast-Track Diagnosis, Research, and Surgery Outcomes with Lipedema Hosts Cindy and Kristy welcome Connie Boyer, an Amazon senior program manager and education lead and board member of the American Lipedema Association, to discuss her lipedema journey and advocacy.
Connie reflects on early signs such as bruising, painful boot shopping, “thunder thighs,” and possible hypermobility, noting family patterns and dynamics around body shape.
She describes learning about lipedema through a St. Louis NPR interview with Dr. Wright, using linked scientific resources to prepare her PCP, and receiving a quick diagnosis in 2022, followed by PT, decongestion, a Washington University metabolic study with MRI/DEXA and punch biopsy, and eventually five surgeries with Dr. Wright that improved mobility and reduced pain.
Connie shares practical advice on compression, leg elevation and ADA work accommodations, anti-inflammatory eating, and sending documentation to providers in advance.00:00 Show Introduction00:55 Meet Connie Boyer02:03 ALA Shirts and Advocacy02:38 Early Signs and Family Clues07:12 Boot Struggles and Body Proportions09:33 Diagnosis Journey Begins09:55 NPR Discovery and Fast Diagnosis14:29 Treatment Progress and Research Study19:14 Finding Supportive Care Team20:29 Self Advocacy With Providers22:35 Surgery Results and Relief24:42 Mobility Wins and Travel Freedom25:38 Joining the American Lipedema Association29:26 Punch Biopsy and Seeing Tissue32:14 Practical Advice Compression and Work36:49 Advocacy Resources and Accommodations38:01 Closing Thanks and Wrap Up
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IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
Connie Boyerhttps://www.instagram.com/constanceboyer/https://l.instagram.com/?u=http%3A%2F%2Fconstanceboyer.com%2F%3Futm_source%3Dig%26utm_medium%3Dsocial%26utm_content%3Dlink_in_bio%26fbclid%3DPAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGnNXuUYvzbd5KXfqgE5AWXuBD6T-Iz8Fl9IRCCD1b15VUlRyOScpzg1mWlkt4_aem_3ZHtHtWFtcuNRPxbfTQaYg&e=AT5QLZxhLLPbh6GMbPta52x3L9eEWAk_jkmViFUq1EtozafKJY2t3YmqSKVAKXaAyfcFoPBr0vGUsrfeFY19vKAC82393wUCCyzYR8Bsng
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Hosts Cindy and Kristy welcome back registered dietitian and lipedema patient Bonnie Newlin of Crave Nourishment to discuss how she uses science-based, integrative testing to personalize nutrition for women with lipedema.
Bonnie explains differences between RDs and non-credentialed nutritionists, shares her pivot from weight loss work after her own lipedema diagnosis, and introduces DNA testing as a stable guide for metabolic, detox, histamine, antioxidant, methylation, hormone, and lipid pathways (including DAO/HNMT, glutathione/SOD, COMT, vitamin D receptor, and APOE-related risk).
Using Cindy’s results, she describes food and targeted supplement strategies (e.g., selenium/Brazil nuts, vitamin D with K2, creatine monohydrate) and cautions against excessive, untested supplement use.
The episode also covers GI-MAP findings (opportunistic microbes, zonulin/leaky gut, secretory IgA, elastase-1), probiotic quality markers, MRT food sensitivity testing, and the DUTCH hormone test.00:00 Show Introduction00:57 Meet Bonnie Newland02:02 RD vs Nutritionist03:47 Why DNA Testing05:18 Histamine Pathways10:10 Leaky Gut and Zonulin11:02 Antioxidants and Glutathione13:38 Choline MTHFR Creatine15:55 Hormones and APOE19:27 Vitamin D and Creatine Tips21:49 Probiotics and Quality26:33 Food First Supplement Caution29:09 GI Map Overgrowths30:51 Occult Blood Warning31:24 Low Elastase And IgA32:45 Gut Bacteria Ratios35:47 Fiber And Diet Tweaks37:31 Influencers Vs Evidence39:09 Testing Options Overview40:28 DNA Testing First42:29 Nutrition Basics First43:20 Creatine Swelling Questions48:15 Christie GI Map Results51:30 Dutch Test Hormones52:34 Where To Find Bonnie53:25 Episode Wrap Up
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IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
Bonnie Newlin:https://www.instagram.com/cravenourishment_thelippyrd/https://l.instagram.com/?u=http%3A%2F%2Fwww.cravenourishment.com%2Flinks%3Futm_source%3Dig%26utm_medium%3Dsocial%26utm_content%3Dlink_in_bio%26fbclid%3DPAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGnbQVbwY4udte-ZOFqHwEbrnrrAcNPDIPFfUWz0woG9Eck2I_LU8nfLzMGEMs_aem_FMrYgh2RSTjOopq8J9QnjA&e=AT6D27cza4Q9rlCwkq0Eo7YPzFH1D3_SNIagocsq6zGDkIIp72Kobu3qHInAT8wAWpgSdlm7gQM7nA7XL65TtpoO2PY3CpvVrKqtDTo1gw
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Hosts Cindy and Kristy welcome Hilary Stowers, A holistic Mental Health counselor for Holistic Health and Nutrition, LLC, National Certified Counselor (NCC), Board-Certified Resident-in-Counseling, Certified Grief Counselor, EMDR-trained clinician, and lipedema patient, to discuss supporting women with lipedema through validation and trauma-informed care.
Hilary shares how she recognized lipedema years before confirmation at FDRS, describes symptoms like column legs, bruising, slow healing, and family history, and explains challenges finding knowledgeable providers, navigating medical gaslighting, and dealing with ambiguous loss and disenfranchised grief.
She outlines comorbidities and complexities including hypermobility, venous insufficiency, endometriosis, and the impact of misdiagnosed Lyme disease and perimenopause on flare-ups.
The conversation covers surgery timelines, insurance barriers and wins, the importance of vetting lipedema-literate providers, and the need for menopause/hormone-literate care.
Hillary explains her holistic counseling approach and where listeners can find her online.00:00 Show Introduction00:57 Meet Hilary Stowers02:41 Counseling Background03:40 Finding Lipedema06:23 Early Signs and Symptoms09:24 Diagnosis Access and Resources15:43 Vetting Providers and Community18:19 Body Image and Lyme Trigger23:50 Comorbidities and Vein Issues26:30 Insurance Delays and Surgery Plans28:05 Perimenopause and New Surgeries32:31 Compression Recovery Routine32:54 Surgery Timeline Breakdown35:05 Menopause Hormones Baselines38:31 Testing Tweaks And Cortisol40:35 Avoiding Blind Hormone Prescriptions42:02 Insurance Coverage For Surgery44:51 Choosing Surgeons And Consults49:55 Community Support And Sharing55:37 Red Flags In Untrained Providers57:52 Counseling Seen Heard Understood01:04:33 Where To Find Hilary01:06:16 Episode Wrap Up
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Kristy's Contact information:
IG https://www.instagram.com/dellalunawellness/
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce, MS,OTR/L, MLD-C
Dellalunawellness.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/lipedema_withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161
Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/
Free surgery course: https://l.bttr.to/6cATB
Hilary Stowers:https://www.instagram.com/hilarystowerscounseling/https://linktr.ee/hilarystowers
- Visa fler
