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In this episode, Deonna and Rhandyl talk with Dr. Chris Hulshof, author of Jesus and Disability: A Guide to Creating an Inclusive Church. He shares how raising his son with disabilities has shaped his faith, theology, and approach to ministry.
Together, they discuss why disability isn’t something to fix but something to embrace, how Jesus modeled inclusion, and what churches can do to create spaces where everyone belongs.
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In this episode, Deonna and Rhandyl share the high, low, and buffalo (random thing that happened) from the past month. From anniversary vacations, to speaking engagements, to family loss and emergencies, it's been an exciting past few weeks!
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Parenting changes us—but parenting a disabled child has transformed us in ways we never expected. In this episode, we talk about how raising our disabled daughters has reshaped our views on parenting, life, and ourselves. Are we better parents now…or just different ones?
Drawing from comments from our incredible community on Instagram and Facebook, this conversation explores the joys, guilt, resilience, and growth that come from raising disabled kids.
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In this episode of Raising Disabled, we talked to pediatric oncology nurse Mary Jenner, the founder of The Butterfly Pig. She has created an innovative company that is making toys that mirror real medical equipment that children interact with in the hospital and at home.
If you would like to donate towards a child receiving a toy from The Butterfly Pig to reduce that child's anxiety surrounding their medical equipment, check out her Wishful Wings program.
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In this episode of Raising Disabled, we talk to Caroline about raising her daughter Briella who has Cerebral Palsy. Caroline is the social media manager for our sponsors Altimate Medical and Zing Standers.
Follow Caroline on Instagram @briellaandme
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In this episode, Deonna and Rhandyl share the high, low, and buffalo (random thing that happened) from the past few weeks. From vacations, concerts, and new ventilators to two hospitalizations and birthday parties, it's been a crazy past month!
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In this episode, we talk to Amanda Griffith Atkins about her new book How to Handle More Than You Can Handle.
We talk about:
how to get out of survival mode,what trauma does to your brain,how to handle the grief associated with disability,how to practice radical acceptance,and how to make meaning in your own life.Follow Amanda on Instagram @amanda.griffith.atkins and buy her book HERE!
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In this episode, we are continuing our series "Dumb Things People Say" by talking about our feelings about receiving unsolicited medical advice from friends, family, and strangers.
We are sharing stories about advice that we have received and that our friends on Instagram have experienced. We talk about what not to say, how we actually want to be supported by those who want to be an advocate, and we give you some ideas as the parent of a disabled child of responses if you receive unwanted medical advice.
Check out the other episodes in our "Dumb Things People Say" here:
When Are They Going to Get Better?
God Give Special Kids to Special People
You Are So Strong
Everything Happens for a Reason
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In this episode, Deonna and Rhandyl share the high, low, and buffalo (random thing that happened) from the last couple of months.
Our prayers are with the flood victims in our home state of Texas. We compiled a small list of places where you can donate to people in need like we have:
https://cftexashillcountry.fcsuite.com/erp/donate/create/fund?funit_id=4201
https://spiritofgiving.org/donate/?int=curbside-home-hero.hill-country-disaster-relief
https://www.cbsnews.com/texas/news/where-to-donate-help-central-texas-flood-recovery/
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In this episode, we talked to Brady Crandall the co-founder of Youth Crews Diapers.
To learn more about these new diapers made just for kids, visit their website HERE.
Follow them on Instagram at @youth.crews
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In this episode, we talked to Alex Dragich about raising her daughter Mattie. Mattie was diagnosed with a rare genetic syndrome called KAT6B.
To follow Alex and Mattie's journey, follow them HERE!
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In this episode, we talk to Rob Gorski AKA The Autism Dad about his 3 autistic sons.
You can learn more about Rob, his mission to educate about autism, and his podcast at theautismdad.com
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In this episode, we look back on 50 episodes of RAISING DISABLED and reflect on our favorite question that we always ask caregivers, "What is the best thing to come out raising your disabled child?" We share some of our favorite answers from our past episodes and then we talk about what our answer is to this question.
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In this episode, we talk to Jillian about raising her kids, Roman and Stella who are battling a rare genetic condition called ASMD.
Follow Jillian on social media @confessionsofararediseasemama and subscribe to her podcast HERE.
Get a copy of her book "Soaring Together" inspired by her disabled children HERE.
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In this episode, we share Deonna's family's experience at Morgan’s Wonderland, the world’s first ultra-accessible theme park located in San Antonio, Texas.
Deonna shares:
What makes Morgan’s Wonderland so special for families with disabilities,Accessibility highlights, from wheelchair-friendly rides to inclusive playgrounds,Our favorite attractions and sensory-friendly features,and tips for parents planning a visit with a child who uses a wheelchair.
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In this episode, we talked to Brittany Lagarde about raising her daughter Sawyer who has Sanfilippo syndrome and her son Zion who has autism.
Follow Brittany on Instagram @happylagardeless
Check out Brittany's husband Sam's book Zion the Lion HERE!
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In this episode we talked with Allison Childress, Shannon Galyean, and Michelle Alcorn of 3 CulinaryMed Docs about their app My Partner Sam.
My Partner Sam is a culinary medicine app that creates customized medically tailored meal plans for people with chronic conditions, specifically for those who have multiple chronic conditions.
To learn more about their mission, visit their website to learn about how their app could benefit your disabled child and family's health.
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In this episode Deonna, Rhandyl, and our listeners share over 45 "life hacks" or ways to make your life easier as a caregiver!
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In this episode we talk to Abbey Luckett Benjamin from Louisiana about raising her daughter Avery.
We talk about her daughter's diagnosis of Adenylosuccinate Lyase Deficiency or ADSL, her seizures, living with a medically complex child in a rural area, Avery participating in dance classes, and how she finds joy in the midst of trials.
Follow her Instagram at @abbeybenj
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In this episode, we share all of the superstitions from our listeners and ourselves surrounding the care of our disabled children.
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