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In this special Complex Care Journal Club podcast episode, co-hosts Drs. Kilby Mann and Kristie Malik interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 78th Annual Meeting in Quebec City, Canada that took place October 23rd-26th 2024. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years.SPEAKERSTori Bahr, MDMedPeds Complex Care PhysicianSection Chief of PediatricsGillette Children's, St. Paul, MinnesotaLaura Brunton, PT, PhD Associate Professor School of Physical Therapy Western University, London, OntarioCaitlin Cassidy, MDAssociate ProfessorDepartments of Physical Medicine & Rehabilitation and PediatricsWestern University, London, OntarioAdam Rosenbloom, MD, MPHComplex Care PediatricianDell Children's Medical CenterUniversity of Texas at Austin, Dell Medical SchoolCristina Sarmiento, MDAssistant ProfessorDepartment of Physical Medicine and RehabilitationUniversity of Colorado Anschutz Medical Campus, Aurora, ColoradoJulie Stutzbach, PT, DPT, PhDAssistant Professor School of Rehabilitative and Health SciencesRegis University, Denver, ColoradoHOSTSKristina Malik, MDAssistant Professor of Pediatrics,University of Colorado School of MedicineMedical Director, KidStreetPediatrician, Special Care Clinic,Children's Hospital ColoradoKilby Mann, MDAssistant ProfessorPediatric Rehabilitation MedicineChildren's Hospital ColoradoDATEInitial publication date: November 11, 2024. ARTICLES AND ADDITIONAL REFERENCES• American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), https://www.aacpdm.org/• AACPDM Complex Care Committee (https://www.aacpdm.org/about-us/committees/complex-care)• Houtrow AJ, Hurwitz MB. A dearth of disability-related competencies in Accreditation Council for Graduate Medical Education's Milestones 2.0. PM R. 2024 Aug 23. doi: 10.1002/pmrj.13257. Epub ahead of print. PMID: 39177053.• Fehlings D, Agnew B, Gimeno H, Harvey A, Himmelmann K, Lin JP, Mink JW, Monbaliu E, Rice J, Bohn E, Falck-Ytter Y. Pharmacological and neurosurgical management of cerebral palsy and dystonia: Clinical practice guideline update. Dev Med Child Neurol. 2024 Sep;66(9):1133-1147. doi: 10.1111/dmcn.15921. Epub 2024 Apr 19. PMID: 38640091.• AACPDM Care Pathway Dystonia in Cerebral Palsy, https://www.aacpdm.org/publications/care-pathways/dystonia-in-cerebral-palsyTRANSCRIPThttps://cdn.bfldr.com/D6LGWP8S/as/p9pj6g7sxn5kjmmgps5wnk4/111124_-_Complex_Care_at_the_American_Academy_for_Cerebral_Palsy_and_Developmental_Medicine_Annual_MeetingPlease visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected] K, Bahr T, Brunton L, Cassidy C, Rosenbloom A, Sarmiento C, Stuzbach J, Mann K. Complex Care at the American Academy for Cerebral Palsy and Developmental Medicine Annual Meeting. 11/2024. OPENPediatrics. Online Podcast.. https://soundcloud.com/openpediatrics/complex-care-at-the-aacpdm-2024.
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In this World Shared Practice Forum podcast, we discuss the Pediatric Sepsis Data CoLaboratory (Sepsis CoLab), an international open data-sharing network to address pediatric sepsis mortality and morbidity. Drs. Kissoon, Ansermino, and Akech discuss the challenges related to the collection and sharing of data in a global context, the latest advancements in sepsis research and treatment, and how they believe this work will drive better patient outcomes.
LEARNING OBJECTIVES
- Recognize the role of the Sepsis CoLab in global sepsis care
- Describe the challenges and strategies for data sharing in healthcare
- Summarize the importance of standardized data collection in sepsis research
- Discuss some specific examples of how data can be used to support initiatives to improve the care of children with sepsis
AUTHORS
Niranjan "Tex" Kissoon, MBBS, FRCP(C), MCCM, FACPE
Professor, Department of Pediatrics,
University of British Columbia,
Investigator, BCCH Research Institute
President, Global Sepsis Alliance
Institute for Global Health
BC Children's Hospital and BC Women's Hospital & Health Centre
Mark Ansermino, MBBCh
Professor
University of British Columbia
Executive Medical Director for Global Health
BC Children's Hospital
Samuel Akech, MD,
Consultant Pediatrician & Epidemiologist
KEMRI-Wellcome Trust
DATE
Initial publication date: October 21, 2024.
ADDITIONAL RESOURCES
Sepsis CoLab: https://wfpiccs.org/pediatric-sepsis-colab/
Pediatric Sepsis CoLab Membership Application: https://rc.bcchr.ca/redcap/surveys/?s=EDCYL7AC79
Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]
CITATION
Kissoon NT, Ansermino JM, Akech S, Wolkbrink TA. Improving Sepsis Care: A Data-Driven Approach. 10/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/improving-sepsis-care-a-data-driven-approach-openpediatrics. -
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In this Complex Care Journal Club podcast episode, Dr. Renee Turchi discusses an intervention study to improve emergency preparedness for families with children and youth with special health care needs. She describes the multiple community partners involved in intervention development, key insights gained while conducting the study, and next steps from this work.
SPEAKER
Renee M. Turchi, MD, MPH, FAAP
Professor and Chair of Pediatrics,
Pediatrician in Chief
St. Christopher's Hospital for Children
HOST
Emily Goodwin, MD
Clinical Associate Professor of Pediatrics,
University of Missouri Kansas City School of Medicine
Pediatrician, General Academic Pediatrics Beacon Program,
Children’s Mercy Kansas City
DATE
Initial publication date: October 7, 2024.
JOURNAL ARTICLE
Griffin JS, Hipper TJ, Chernak E, Berhane Z, Davis RK, Popek L, Kurapati P, Kim J, Turchi RM. A Virtual Home Preparedness Intervention Centered on Children and Youth With Special Health Care Needs. Acad Pediatr. 2024 Jun 10:S1876-2859(24)00167-0. doi: 10.1016/j.acap.2024.06.002. Epub ahead of print. PMID: 38866363. https://www.academicpedsjnl.net/article/S1876-2859(24)00167-0/fulltext
OTHER REFERENCES
Hipper TJ, Davis R, Massey PM, Turchi RM, Lubell KM, Pechta LE, Rose DA, Wolkin A, Briseño L, Franks JL, Chernak E. The Disaster Information Needs of Families of Children with Special Healthcare Needs: A Scoping Review. Health Secur. 2018 May/Jun;16(3):178-192. doi: 10.1089/hs.2018.0007. Epub 2018 Jun 8. PMID: 29883200; PMCID: PMC11015856. https://pubmed.ncbi.nlm.nih.gov/29883200/
TRANSCRIPT
https://op-docebo-images.s3.amazonaws.com/Transcripts/Preparing+for+Emergencies+Planning+and+Partnerships+with+Families_Turchi_100824.pdf
Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]
CITATION
Turchi RM, Goodwin EJ. Preparing for Emergencies: Planning and Partnerships with Families. 10/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/preparing-for-emergencies-planning-and-partnerships-with-families. -
In this World Shared Practice Forum Podcast, Drs. Adrienne Randolph and Aaron Bodansky explore the groundbreaking research findings that uncover the pathophysiological mechanism behind multisystem inflammatory syndrome in children (MIS-C). These findings shed light on the characteristic immune response of patients who develop MIS-C, and provide insight into the development of post-infectious auto-immune disease phenotypes.
LEARNING OBJECTIVES
- Describe the pathophysiology of MIS-C, including the clinical features and molecular immune response
- Describe the immune dysregulation that results in MIS-C, including the role of autoantibodies and T-cell responses
- Identify the potential connections between SARS-CoV-2 infection and the development of autoimmune responses
- Recognize the implications of the study findings for other related conditions such as long COVID and sepsis
AUTHORS
Adrienne Randolph, MD, MSc
Senior Associate in Critical Care Medicine, Department of Anesthesiology, Critical Care and Pain Medicine
Boston Children's Hospital
Professor of Anaesthesia and Pediatrics
Harvard Medical School
Aaron Bodansky, MD
Assistant Professor
Pediatric Critical Care
University of California, San Francisco School of Medicine
DATES
Initial publication: September 24, 2024.
ARTICLES REFERENCED
Bodansky A, Mettelman RC, Sabatino JJ Jr, et al. Molecular mimicry in multisystem inflammatory syndrome in children. Nature. 2024;632(8025):622-629. doi:10.1038/s41586-024-07722-4.
Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]
CITATION
Randolph AG, Bodansky A, Burns JP. Unveiling MIS-C's Immune Response: Molecular Mimicry. 09/2024. OPENPediatrics. https://soundcloud.com/openpediatrics/unveiling-mis-cs-immune-response-molecular-mimicry-by-a-randolph-and-a-bodansky-openpediatrics -
In this Complex Care Journal Club podcast episode, Ms. de Pins and Dr. Lin discuss a quality improvement initiative to standardize post-visit written communication in a multidisciplinary clinic. They describe stakeholder involvement in defining project goals, effective interventions to reduce the use of medical jargon in after-visit summaries, and next steps from this work.
SPEAKERS
Agathe de Pins, BSc, MSc
Medical Student
Icahn School of Medicine at Mount Sinai
Elaine Lin, MD
Co-Director, Cerebral Palsy and Spasticity Center
Pediatrician, Complex Care Service,
Boston Children's Hospital
HOST
Kristina Malik, MD
Assistant Professor of Pediatrics,
University of Colorado School of Medicine
Medical Director, KidStreet
Pediatrician, Special Care Clinic,
Children's Hospital Colorado
DATE
Initial publication: September 9, 2024.
JOURNAL ARTICLE
de Pins AM, Adu-Amankwah D, Shadman KA, Hess SM, Elaiho CR, Butler LR, Ranade SC, Shah BJ, Fields R, Lin EP. A Quality Improvement Project to Improve After-visit Summary Patient Instructions in a Pediatric Multidisciplinary Neuromuscular Program. Pediatr Qual Saf. 2024 Jul 10;9(4):e743. doi: 10.1097/pq9.0000000000000743. PMID: 38993270; PMCID: PMC11236396.
OTHER REFERENCES
Gidengil C, Parast L, Burkhart Q, Brown J, Elliott MN, Lion KC, McGlynn EA, Schneider EC, Mangione-Smith R. Development and Implementation of the Family Experiences With Coordination of Care Survey Quality Measures. Acad Pediatr. 2017 Nov-Dec;17(8):863-870. doi: 10.1016/j.acap.2017.03.012. Epub 2017 Mar 31. PMID: 28373108.
Hess SM, Adu-Amankwah D, Elaiho CR, Butler LR, Ranade SC, Shah BJ, Shadman K, Fields R, Lin EP. Qualitative feedback from caregivers in a multidisciplinary pediatric neuromuscular clinic. J Pediatr Rehabil Med. 2024;17(2):237-246. doi: 10.3233/PRM-230011. PMID: 38427510; PMCID: PMC11306999.
TRANSCRIPT
https://op-docebo-images.s3.amazonaws.com/Transcripts/Drop+the+Jargon_Lin+and+de+Pins_090924.pdf
Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6
Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]
CITATION
de Pins AM, Lin EP, Malik K. Drop the Jargon: Improving Written Communication to Families After Multidisciplinary Care. 9/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/drop-the-jargon-improving-written-communication-to-families-after-multidisciplinary-care -
This podcast discusses anesthetic considerations for patients with unrepaired tetralogy of Fallot who are undergoing non-cardiac surgeries.
LEARNING OBJECTIVES
Upon listening to this podcast, learners will be able to:
- Explain preoperative considerations
- Provide an anesthetic management plan
- Describe specific non-cardiac surgical procedures and the considerations that need to be addressed when performing them
- Anticipate the postoperative considerations
AUTHORS
Annette Schure, MD
Senior Associate in Cardiac Anesthesia
Boston Children's Hospital
Assistant Professor of Anesthesia
Harvard Medical School
Christian Refakis, MD
Clinical Fellow
Department of Anesthesiology, Critical Care and Pain Medicine,
Boston Children's Hospital
Robert Soohey
Medical Student
Tufts University School Of Medicine
DATES
Initial publication: September 4, 2024.
Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user. For further information on how to enroll, please email: [email protected]
CITATION
Refakis C, Marcley S, Soohey R, Marques B, Wolbrink TA, Schure AY. Anesthesia for Non-Cardiac Surgeries: Unrepaired TOF. 09/2024. OPENPediatrics. Podcast: https://soundcloud.com/openpediatrics/anesthesia-for-non-cardiac-surgeries-unrepaired-tof-openpediatrics. -
In this World Shared Practice Forum Podcast, experts from three large pediatric hospitals discuss their collaborative care models designed to optimize care for patients undergoing hematopoietic stem cell transplant. This global panel reviews the history, structure, and current state of these models, and offers insight into how clinicians can develop and improve their own collaborative care models.
LEARNING OBJECTIVES
- Identify the importance of collaborative care models for hematopoietic stem cell transplant patients
- Discuss the status of current care models in three pediatric stem cell transplant programs
- Apply insights on how clinicians develop collaborative care models and steps that can be taken to make ongoing improvements
AUTHORS
Asya Agulnik, MD, MPH
Associate Member, St. Jude Faculty
Director, Global Critical Care Program
Director, Euro Regional Program
St. Jude Children’s Research Hospital
Indira Jayakumar, MD
Lead Pediatric Intensivist
Apollo Specialty Cancer Hospitals
Co Convenor- IAP Transplant Critical Care,
Chairman- Pediatric wing, ECMO Society of India
Chennai, Tamil Nadu, India
Leslie Lehmann, MD
Attending Physician, Pediatric Stem Cell Transplant Center
Boston Children's Hospital/Dana Farber Cancer Institute
Associate Professor of Pediatrics
Harvard Medical School
Revathi Raj, MBBS, DCH, PLAB, MRCP, FRCPath
Senior Consultant
Department of Pediatric Hematology and Oncology and Blood and Marrow Transplantation
Apollo Hospitals
Chennai, Tamil Nadu, India
Adrienne Randolph, MD, MSc
Senior Associate in Critical Care Medicine, Department of Anesthesiology, Critical Care and Pain Medicine
Boston Children's Hospital
Professor of Anaesthesia and Pediatrics
Harvard Medical School
Aimee C. Talleur, MD
Assistant Member, Department of Bone Marrow Transplantation and Cellular Therapy
Fellowship Director, BMTCT Fellowship Program
St. Jude Children's Research Hospital
DATES
Initial publication: August 26, 2024.
ARTICLES REFERENCED
• Zinter MS, McArthur J, Duncan C, et al. Candidacy for Extracorporeal Life Support in Children After Hematopoietic Cell Transplantation: A Position Paper From the Pediatric Acute Lung Injury and Sepsis Investigators Network’s Hematopoietic Cell Transplant and Cancer Immunotherapy Subgroup. Pediatr Crit Care Med. 2022;23(3):205-213. doi:10.1097/PCC.0000000000002865 (13:04)
• St. Jude Global Critical Care program, https://global.stjude.org/en-us/programs/transversal-programs/critical-care.html, Email: [email protected] (25:49)
Please visit: http://www.openpediatrics.org
OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user. For further information on how to enroll, please email: [email protected]
CITATION
Agulnik A, Jayakumar I, Lehmann L, Raj R, Randolph AG, Talleur AC, Wolbrink TA. Collaborative Care Models to Optimize Care of Hematopoietic Stem Cell Transplant Patients. 08/2024. OPENPediatrics. Podcast https://soundcloud.com/openpediatrics/collaborative-care-models-to-optimize-care-of-hsct-patients-by-t-wolbrink-et-al-openpediatrics. -
In this Complex Care Journal Club podcast episode, Dr. Kate Nelson discusses a qualitative study exploring decision-making skills developed by family caregivers of children with medical complexity. She describes the impact of contextual factors and relationships within care teams on decision-making, family partnership in research, and the next steps from this work.
SPEAKER
Kate Nelson, MD, PhD
Staff Pediatrician, Paediatric Advanced Care Team
The Hospital for Sick Children
Scientist
SickKids Research Institute
Assistant Professor
University of Toronto
HOST
Kathleen Huth, MD, MMSc
Pediatrician, Complex Care Service, Division of General Pediatrics
Boston Children's Hospital
Assistant Professor of Pediatrics
Harvard Medical School
DATE
Initial publication date: August 5, 2024.
Journal Club Article
Finlay M, Chakravarti V, Buchanan F, Dewan T, Adams S, Mahant S, Nicholas D, Widger K, McGuire KM, Nelson KE. Learning to Trust Yourself: Decision-Making Skills Among Parents of Children With Medical Complexity. J Pain Symptom Manage. 2024 May 28:S0885-3924(24)00792-9. doi: 10.1016/j.jpainsymman.2024.05.023. Epub ahead of print. PMID: 38810951.
TRANSCRIPT
https://op-docebo-images.s3.amazonaws.com/Transcripts/Choice+and+Voice+Family+Perspectives+on+Decision-making+for+Children+_nelson_080524.pdf
Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6
Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]
CITATION
Nelson K, Huth K. Choice and Voice: Family Perspectives on Decision-making for Children with Medical Complexity. 8/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/choice-and-voice-family-perspectives-on-decision-making-for-children-with-medical-complexity -
This podcast discusses the preoperative, operative, and postoperative considerations for patients undergoing tonsillectomy, including anatomy and pathophysiology, preoperative evaluation, anesthetic management, operative approach, and postoperative care.
LEARNING OBJECTIVES
Upon listening to this podcast, learners will be able to:
• Explain the anatomy and pathophysiology
• Describe key considerations for the preoperative anesthetic evaluation and intraoperative anesthetic management plan
• Review common operative approaches
• Discuss postoperative considerations
AUTHORS
Haley Moulton, BA
MS4
Geisel School of Medicine at Dartmouth
Eelam Adil, MD, MBA, FAAP
Associate
Department of Otolaryngology and Communication Enhancement
Boston Children's Hospital
Assistant Professor of Otolaryngology
Harvard Medical School
Ashish Ankola, MD
Assistant Professor of Pediatrics
Texas Children's Hospital
Sonya Mathews
Pre-Medical Student
Jue Wang, MD
Associate in Perioperative Anesthesia
Department of Anesthesiology, Critical Care and Pain Medicine
Boston Children's Hospital
DATES
Initial publication date: July 10, 2024
Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user. For further information on how to enroll, please email: [email protected]
CITATION
Moulton H, Adil E, Ankola A, Mathews S, Wang JT, Marcley S, McFee AM, Wolbrink TA. Tonsillectomy. 07/2024. OPENPediatrics. Podcast. https://soundcloud.com/openpediatrics/tonsillectomy-openpediatrics -
In this Complex Care Journal Club podcast episode, Ms. Bethlyn Vergo Houlihan and Ms. Meg Comeau discuss a qualitative study of the perspectives of families of children with medical complexity on what is needed to promote their quality of life and well-being. They describe the family-led approach to designing and conducting the study, the importance of upholding human dignity as a major theme, and next steps to translate their findings into systems change.SPEAKERSBethlyn Vergo Houlihan, MSW, MPHProject Director, Principal InvestigatorCenter for Innovation in Social Work & HealthBoston University School of Social WorkMeg Comeau, MHASenior Project Director/Principal InvestigatorCenter for Innovation in Social Work and HealthBoston University School of Social WorkHOSTKristina Malik, MDAssistant Professor of Pediatrics,University of Colorado School of MedicineMedical Director, KidStreetPediatrician, Special Care Clinic,Children's Hospital ColoradoDATEInitial publication date: July 1, 2024.JOURNAL CLUB ARTICLESHoulihan BV, Coleman C, Kuo DZ, Plant B, Comeau M. What Families of Children With Medical Complexity Say They Need: Humanism in Care Delivery Change. Pediatrics. 2024 Jan 1;153(Suppl 1):e2023063424F. doi: 10.1542/peds.2023-063424F. PMID: 38165241.Randolph G, Coleman C, Allshouse C, Plant B, Kuo DZ. Measuring What Matters to Children With Medical Complexity and Their Families. Pediatrics. 2024 Jan 1;153(Suppl 1):e2023063424C. doi: 10.1542/peds.2023-063424C. PMID: 38165239.TRANSCRIPTchrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://op-docebo-images.s3.amazonaws.com/Transcripts/Upholding+Human+Dignity+for+Children+with+Medical+Complexity+and+their+Families_070124.pdfClinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected] BV, Comeau M, Malik K. Upholding Human Dignity for Children with Medical Complexity and their Families. 7/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/upholding-human-dignity-for-children-with-medical-complexity-and-their-families
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This podcast provides an overview of the presentation of inflammatory bowel disease (IBD) and compares it to Crohn's disease and ulcerative colitis phenotypes.
LEARNING OBJECTIVES
By the end of this podcast, the learner will be able to:
• Recognize the clinical presentation of inflammatory bowel disease and compare Crohn's disease and ulcerative colitis phenotypes.
• Plan the diagnostic evaluation of patients with suspected IBD.
• Define treatment goals and list available treatment options.
AUTHORS
Jodie Ouahed, MD, MMSc
Director, VEOIBD Clinic
Attending Physician, Inflammatory Bowel Disease Center, Boston Children's Hospital
Assistant Professor, Harvard Medical School
Lauren Collen, MD
Attending Physician, Division of Gastroenterology, Hepatology, and Nutrition, Boston Children's Hospital
Instructor of Pediatrics, Harvard Medical School
DATES
Initial publication: June 25, 2024
Please visit: http://www.openpediatrics.org
OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user. For further information on how to enroll, please email: [email protected]
CITATION
Collen LV*, Ouahed J*, Brodie K, Wills K, Combs A, Snapper SB. Inflammatory Bowel Disease. 6/2024. OPENPediatrics. Podcast: https://soundcloud.com/openpediatrics/inflammatory-bowel-disease-by-j-ouahed-l-collen-openpediatrics. *These authors contributed equally to this work -
In this World Shared Practice Forum podcast, PICU podcasters share their insights on how to get started and deliver successful podcasts. Key points include strategies for finding co-hosts and guests, ways to promote podcasts, and the importance of finding ways to incorporate podcasts into academic CVs.
LEARNING OBJECTIVES
Following this discussion, learners will be able to:
- Discuss strategies to identify podcast co-hosts and guests
- Describe ways that podcasts can be shared with potential listeners
- Compose an academic CV that includes podcasts and appropriate metrics
AUTHORS
Peta Alexander, MBBS, FRACP, FCICM
Senior Associate Cardiologist, Department of Cardiology
Boston Children’s Hospital
Associate Professor in Pediatrics
Harvard Medical School
Podcast: Pediatrica Intensiva
https://pedsintensiva.com/
Erin Bennett, MD, MPH
Associate Professor, Division of Critical Care Medicine, Department of Pediatrics
University of Arkansas for Medical Sciences/Arkansas Children’s Hospital
Podcast: PCCM Audio Summary
https://www.sccm.org/Research/Journals/Journal-Audio-Summaries
Rahul Damania, MD
Pediatric Critical Care Physician
Cleveland Clinic Children's Hospital
Podcast: PICU Doc on Call
https://picudoconcall.org/
Zachary Hodges, MD
Pediatric Critical Care Fellow Physician
University of Texas Southwestern
Podcast: PedsCrit
https://www.buzzsprout.com/1809998
Greg Kelly, MBBS, MBA, FRACP, FCICM
Pediatric Intensivist
Children's Hospital at Westmead, Sydney, Australia
Podcast: Pediatrica Intensiva
https://pedsintensiva.com/
Elizabeth Mack, MD, MS
Pediatric Critical Care Physician
Professor, pediatrics
Medical University of South Carolina (MUSC)
Podcast: SCCM Podcast
www.sccm.org/podcast
Alice Shanklin, MD
Critical Care Fellow
Children's National Hospital
Podcast: PedsCrit
https://www.buzzsprout.com/1809998
DATES
Initial publication date: June 18, 2024.
ARTICLES REFERENCED
23:16: Cabrera D, Vartabedian BS, Spinner RJ, Jordan BL, Aase LA, Timimi FK. More Than Likes and Tweets: Creating Social Media Portfolios for Academic Promotion and Tenure. J Grad Med Educ. 2017;9(4):421-425. doi:10.4300/JGME-D-17-00171.1. https://pubmed.ncbi.nlm.nih.gov/28824752/
Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user. For further information on how to enroll, please email: [email protected]
Alexander P, Bennett E, Damania R, Hodges Z, Kelly G, Mack E, Shanklin A, Wolbrink TA. PICU Podcasts: Behind the Mic. 06/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/picu-podcasts-behind-the-mic-by-t-wolbrink-et-al-openpediatrics -
In this Complex Care Journal Club podcast episode, Dr. Sarah Sobotka discusses a mixed-methods study with longitudinal assessment of neurodevelopmental profiles of children requiring mechanical ventilation after hospital discharge and perceived influences on development. She describes lessons learned while designing and performing the study, the need for dedicated therapeutic strategies for this patient population, and next steps from this work.
SPEAKER
Sarah Sobotka, MD, MSCP
Assistant Professor
Section of Developmental and Behavioral Pediatrics, Department of Pediatrics,
University of Chicago
HOST
Kilby Mann, MD
Assistant Professor
Pediatric Rehabilitation Medicine
Children's Hospital Colorado
DATE
Initial publication date: June 10, 2024.
JOURNAL CLUB ARTICLES
Sobotka SA, Lynch E, Liao C, Graham RJ, Msall ME. Autism and neurodevelopmental disability risks in children with tracheostomies and ventilators. Pediatr Pulmonol. 2024 Mar 1. doi: 10.1002/ppul.26921. Epub ahead of print. PMID: 38426806.
Sobotka SA, Lynch E, Msall ME, Graham RJ. Early childhood developmental skills of children with tracheostomies and ventilators recently discharged home. Pediatr Pulmonol. 2023 Mar;58(3):853-865. doi: 10.1002/ppul.26265. Epub 2022 Dec 28. PMID: 36448249; PMCID: PMC10680148.
TRANSCRIPT
Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6
Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: [email protected]
CITATION
Sobotka SA, Mann K. Need for Neurodevelopmental Follow-up for Children with Invasive Mechanical Ventilation. 6/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/need-for-neurodevelopmental-follow-up-for-children-with-invasive-mechanical-ventilation -
In this World Shared Practice Forum podcast, Drs. Sapna Kudchadkar and Kate Madden discuss early mobilization programs in pediatric intensive care units (PICUs). They highlight the importance of interdisciplinary collaboration, including the need for shared mental frameworks regarding sedation practices and delirium screening and management. Dr. Kudchadkar describes the potential risks of delirium, the benefits of keeping patients oriented and engaged, and highlights the need for sustainability of early mobilization. She also discusses the implementation and challenges of the PICU UP! program.
LEARNING OBJECTIVES
Following this discussion, learners will be able to:
- Discuss the importance of early mobilization in PICU
- Explain the risks of delirium, as well as appropriate screening and management
- Identify the origins, goals, and benefits of the PICU Up! program
AUTHORS
Sapna Kudchadkar, MD, PhD, FCCM
Professor, Anesthesiologist-in-Chief of Johns Hopkins Children's Center, Vice Chair for Pediatric Anesthesiology and Critical Care Medicine, Director of the John Hopkins PICU Up! Program
Johns Hopkins University School of Medicine
Kate Madden, MD
Senior Associate, BCH Medical-Surgical ICU
Boston Children's Hospital
Assistant Professor of Anesthesiology
Harvard Medical School
DATE
Initial publication date: May 24, 2024.
ARTICLES REFERENCED
00:04:43 Wieczorek B, Ascenzi J, Kim Y, et al. PICU Up!: Impact of a Quality Improvement Intervention to Promote Early Mobilization in Critically Ill Children. Pediatr Crit Care Med. 2016;17(12):e559-e566. doi:10.1097/PCC.0000000000000983 (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5138131/)
00:06:32 Marra A, Ely EW, Pandharipande PP, Patel MB. The ABCDEF Bundle in Critical Care. Crit Care Clin. 2017;33(2):225-243. doi:10.1016/j.ccc.2016.12.005 (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5351776)
00:06:37 ICU liberation initiative (https://www.sccm.org/iculiberation)
00:33:24 Lin JC, Srivastava A, Malone S, et al. Caring for Critically Ill Children With the ICU Liberation Bundle (ABCDEF): Results of the Pediatric Collaborative. Pediatr Crit Care Med. 2023;24(8):636-651. doi:10.1097/PCC.0000000000003262 (https://pubmed.ncbi.nlm.nih.gov/37125798/)
00:34:32 Kudchadkar SR, Nelliot A, Awojoodu R, et al. Physical Rehabilitation in Critically Ill Children: A Multicenter Point Prevalence Study in the United States. Crit Care Med. 2020;48(5):634-644. doi:10.1097/CCM.0000000000004291 (https://pubmed.ncbi.nlm.nih.gov/32168030/)
00:39:40 X @SapnaKMD (https://x.com/sapnakmd)
Please visit: http://www.openpediatrics.org
OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access and thus at no expense to the user. For further information on how to enroll, please email: [email protected]
Kudchadkar SR, O’Hara JE, Madden K. PICU Up!: Collaboration for Success by S. Kudchadkar | OPENPediatrics. 05/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/picu-up-collaboration-for-success-by-s-kudchadkar-openpediatrics -
In this special Complex Care Journal Club podcast episode, co-hosts Kristie Malik, Emily Goodwin and Kathleen Huth interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the Pediatric Academic Societies (PAS) 2024 annual meeting. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years.
SPEAKERS
Mary Arakelyan, MPH
Research Project Manager
Dartmouth Health Children's
Tammie Dewan, MD, MSc
Clinical Assistant Professor
Department of Pediatrics, University of Calgary
Pediatrician, Alberta Children's Hospital
Caleb Easterly, BA
MD/PhD Student
University of North Carolina School of Medicine
Kevin Huynh, MS
Medical Student
University of Pittsburgh School of Medicine
Ruchi Kaushik, MD, MEd, MPH
Medical Director of Education and Research
Imagine Pediatrics, Houston TX
Joanna Leyenaar, MD, PhD
Professor, Department of Pediatrics
Dartmouth Health Children's
Savithri Nageswaran, MD, MPH
Professor, Department of Pediatrics
Wake Forest University School of Medicine
Julia Reedy, MA
Qualitative Analyst
ACCORDS, University of Colorado
S. Margaret Wright, MD, MPH
Clinical Assistant Professor of Pediatrics
University of Missouri-Kansas City School of Medicine
Justin Yu, MD, MS
Assistant Professor of Pediatrics
UPMC Children’s Hospital of Pittsburgh
HOSTS
Kristina Malik, MD
Pediatrician, Special Care Clinic,
Children's Hospital Colorado
Emily J Goodwin, MD
Pediatrician, General Academic Pediatrics Beacon Program
Children’s Mercy Kansas City
Kathleen Huth, MD, MMSc
Pediatrician, Complex Care Service, Division of General Pediatrics
Boston Children's Hospital
DATE
Initial publication: May 15, 2024.
REFERENCES
Fehlings D, Agnew B, Gimeno H, Harvey A, Himmelmann K, Lin JP, Mink JW, Monbaliu E, Rice J, Bohn E, Falck-Ytter Y. Pharmacological and neurosurgical management of cerebral palsy and dystonia: Clinical practice guideline update. Dev Med Child Neurol. 2024 Apr 19. doi: 10.1111/dmcn.15921. Epub ahead of print. PMID: 38640091.
Pediatric Academic Societies. Who we are. Accessed May 6, 2024. https://www.pas-meeting.org/about/
TRANSCRIPT
Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6
Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access, thus at no expense to the user. For further information on how to enroll, please email: [email protected]
CITATION
Malik K, Goodwin EJ, Arakelyan M, Dewan T, Easterly C, Huynh K, Kaushik R, Leyenaar J, Nageswaran S, Reedy J, Wright SM, Yu J, Huth K. Practice-Changing Research in Complex Care at the Pediatric Academic Societies 2024 Annual Meeting. 5/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/practice-changing-research-in-complex-care-at-the-pediatric-academic-societies-2024-annual-meeting -
World PICU Awareness Week '24 aims to shine a spotlight on the tireless efforts and innovative practices implemented in the PICU, aiming for better patient outcomes and enhanced quality of life. This series of podcasts focuses on the multifaceted nature of the ICU Liberation Bundle, understanding the importance of pain control, optimizing nutrition, and ensuring safe and timely liberation from mechanical ventilation. Through the six vital elements, we unite to advocate for the well-being and recovery of our most vulnerable patients.
This episode is centered around the G Element of the Liberation bundle: Good Nutrition.
GUEST
Lynne Latten, BSc, RD
Paediatric Intensive Care Dietitian
Alder Hey Children's Hospital
Liverpool, England
HOST
Lyvonne Tume, RN, B Nurs, MSc Clinical Nursing (Crit Care) PGDE, PhD
Professor of Critical Care Nursing
Edge Hill University
Ormskirk, England, United Kingdom
DATES
Initial Publication date: May 10, 2024 -
World PICU Awareness Week '24 aims to shine a spotlight on the tireless efforts and innovative practices implemented in the PICU, aiming for better patient outcomes and enhanced quality of life. This series of podcasts focuses on the multifaceted nature of the ICU Liberation Bundle, understanding the importance of pain control, optimizing nutrition, and ensuring safe and timely liberation from mechanical ventilation. Through the six vital elements, we unite to advocate for the well-being and recovery of our most vulnerable patients.
This episode is centered around the F Element: Family Engagement and Empowerment.
GUEST
Lorena Acevedo, MD
Pediatric Intensivist
Fundación CardioInfantil
Bogota, Colombia
Elis de Pellegrin Rossi, MA
Hospital Clinical Psychologist
Hospital de Clinicas de Porto Alegre
Porto Alegre, Brazil
HOST
Cintia Johnston, Pt MsC PhD Post-doctor
Advisor Professor, Postgraduate Program, Department of Pediatrics
Faculty of Medicine of the University of São Paulo (FMUSP) – Brazil.
DATES
Initial Publication date: May 9, 2024 -
World PICU Awareness Week '24 aims to shine a spotlight on the tireless efforts and innovative practices implemented in the PICU, aiming for better patient outcomes and enhanced quality of life. This series of podcasts focuses on the multifaceted nature of the ICU Liberation Bundle, understanding the importance of pain control, optimizing nutrition, and ensuring safe and timely liberation from mechanical ventilation. Through the six vital elements, we unite to advocate for the well-being and recovery of our most vulnerable patients.
This episode is centered around the E Element: Early Mobility and Exercise.
GUESTS
Joel Lim Kian Boon, MBBS, MRCPCH, MMED
Consultant, Clinical Assistant Professor
Children's Intensive Care Unit, KK Women's and Children's Hospital
Singapore
Yang Liying, MSc
Senior Physiotherapist
KK Women's and Children's Hospital
Singapore
HOST
Qalab Abbas, MBBS, FCCM
Associate Professor
Aga Khan University
Karachi, Pakistan
DATES
Initial Publication date: May 8, 2024 -
World PICU Awareness Week '24 aims to shine a spotlight on the tireless efforts and innovative practices implemented in the PICU, aiming for better patient outcomes and enhanced quality of life. This series of podcasts focuses on the multifaceted nature of the ICU Liberation Bundle, understanding the importance of pain control, optimizing nutrition, and ensuring safe and timely liberation from mechanical ventilation. Through the six vital elements, we unite to advocate for the well-being and recovery of our most vulnerable patients.
This episode is centered around the D Element: How to Assess, Prevent, and Manage Delirium.
GUEST
Heidi Smith, MD, MSCI
Professor of Anesthesiology and Pediatrics
Vanderbilt University Medical Center
Nashville, Tennessee, USA
HOST
Karen Choong, MB BCh, MSc
Professor, Department of Pediatrics and Critical Care
Department of Health Research Methods, Evidence and Impact
McMaster University
Hamilton, Ontario, CA
DATES
Initial Publication date: May 7, 2024 -
World PICU Awareness Week '24 aims to shine a spotlight on the tireless efforts and innovative practices implemented in the PICU, aiming for better patient outcomes and enhanced quality of life. This series of podcasts focuses on the multifaceted nature of the ICU Liberation Bundle, understanding the importance of pain control, optimizing nutrition, and ensuring safe and timely liberation from mechanical ventilation. Through the six vital elements, we unite to advocate for the well-being and recovery of our most vulnerable patients.
This episode is centered around the B Element: Both Spontaneous Awakening Trials (SATs) and Spontaneous Breathing Trials (SBTs).
GUESTS
Kuban D. Naidoo, MD, CertCritCare (Paed) (SA)
Physician
Chris Hani Baragwanath Academic Hospital, University of the Witwatersrand
Johannesburg, South Africa
HOST
Robin Saggers, MBBCh (Wits) FCPaed (SA) MMed Paed (Wits)
Physician
Chris Hani Baragwanath Academic Hospital, University of the Witwatersrand
Johannesburg, South Africa
DATES
Initial Publication date: May 6, 2024 - Visa fler
