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Welcome to episode 16 of Inside Out by Amber. The podcast where I get to chat about poo and life with bowel issues or stoma bags with a range of wonderful guests.
In this episode, I chat to the wonderful Natalie Amber all about the modelling industry, body positivity, self-love, awareness and more in relation to her journey with Crohn’s Disease, life with a stoma and post-reversal.
Just some of the things that Natalie Amber discusses in this episode are her journey with Crohn’s Disease, a temporary stoma and reversal surgery, her career as a model and a dancer as well as other aspects of her journey that she’s worked on not only to develop her own mindset and attitude but, to help others with theirs too such as body positivity, self-love and all of that good stuff! She also touches on relationships, female empowerment, mental health and her views on disability representation and awareness. She also provides an abundance of useful recommendations, tips & tricks for gratitude, self-love, acceptance and body confidence.---
I really hope that you enjoyed the episode and took something from it. If so, please do leave it a review or find it on socials; @insideoutbyamberFind out more from Natalie Amber here; https://www.instagram.com/natalie_amber1/
**A thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
*All music paid for via EpidemicSound subscription* -
Welcome to episode 15 of Inside Out by Amber. The podcast where I get to chat about poo and life with Bowel issues or stoma bags with a range of wonderful guests.
In this episode, I chat to the brilliant Yvonne Holley, otherwise known as @crohns.mummy all about her experiences of pregnancy and motherhood with Crohn’s Disease and a stoma bag.
Just some of the things that Yvonne discusses in this episode are her journey Crohn’s Disease and a stoma, how she balanced her treatments & surgeries with pregnancy, the differences between both of her pregnancies and balancing motherhood with a chronic illness.
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I really hope that you enjoyed the episode and took something from it. If so, please do leave it a review or find it on socials; @insideoutbyamberFind out more from Yvonne here; https://www.instagram.com/crohns.mummy/
**A thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
*All music paid for via EpidemicSound subscription* -
Saknas det avsnitt?
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In this episode, I chat to the wonderful Billie Anderson (who never fails to amuse me with the sheer amount she does for the IBD and ostomy community). We discuss topics of confidence, negativity, the work place and dating.
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I really hope that you enjoyed the episode and took something from it. If so, please do leave it a review or find it on socials; @insideoutbyamberFind out more from Billie here; https://www.instagram.com/billieandersonx/
**A thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
*All music paid for via EpidemicSound subscription* -
In this episode, I am joined by the wonderful Moeed Majeed. Just some of the many things that we discuss include why Moeed decided to share his journey so intimately & where that has lead him as well as topics of fashion, comparison, positivity, 'swag bags' and body image while living with Crohn’s Disease and a stoma.
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If you enjoyed the episode, please do hit download or, find it on socials; @insideoutbyamberFind out more from Moeed here; https://www.instagram.com/moeedmajeed/
**A thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
*All music paid for via EpidemicSound subscription* -
Every week I am joined by a special guest, but this week I am proud to welcome a particularly special guest... My younger sibling, Poppy.
If you or a loved one has a chronic illness, bowel disease and / or undergone surgery, you'll know all too well that it doesn't only affect the sufferer but, it impacts everyone around them in one way or another too.
Poppy, is nine years younger than me and has therefore only ever known life with me unwell. Poppy really wanted to get involved with the podcast so, I thought it would be great to chat to her and share her perspective of growing up as a sibling of someone with IBD and a stoma. In this episode, Poppy and I discuss a number of things including what she thinks the best and worst things are about having a sibling who lives with an illness and a stoma as well as any possible advice she has for other siblings or family members.
We hope that we can help other siblings and family members who may also have a loved one who is managing chronic illness or undergoing surgery.
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I really hope that you enjoyed the episode and took something from it. If so, please do leave it a review or find it on socials; @insideoutbyamber**A thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
*All music paid for via EpidemicSound subscription* -
In this episode, I chat to James Conlon about his experiences of living with Ulcerative Colitis, particularly focusing on topics of advocacy, body image, mental health and dating. Topics that needless to say, are pretty prominent to many of us regardless of our age, gender or diagnosis. I was really interested in chatting to James about these things from a male’s perspective and I’m proud to share this very raw and honest conversation with James.
**If these are topics that you feel might be unsettling for you to listen to at this moment in time then I suggest that perhaps you skip this episode and come back to it at another point. Also, I'd just like to reiterate that each individuals experiences are different but, I hope that you can learn, relate to or find comfort in James'.
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Find more from James here; https://www.facebook.com/james.conlon3 // https://twitter.com/JamesConlon_
**A thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
Keep up to date and get involved with the podcast over on socials @insideoutbyamber
*All music paid for via EpidemicSound subscription* -
In this episode, I'm pleased to welcome another healthcare professional. This week, I chat to Consultant Dietician Sophie Medlin where she shares a breadth of insight and knowledge in the field of gut health nutrition while answering a host of your questions.
This conversation and the questions discussed, will be particularly useful for those with IBD and / or stomas however, provides some great general diet and gut health related advice and information too.
---Find more from Sophie here; https://www.instagram.com/sophiedietitian/ // https://www.citydietitians.co.uk/
**A thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
Keep up to date and get involved with the podcast over on socials @insideoutbyamber
*All music paid for via EpidemicSound subscription* -
In this episode, I chat to Katie who is a Chronic Illness Coach that aims to help others with chronic illness find wellbeing. In this episode, we discuss Katie’s personal journey, the concept of wellbeing and a host of tips and tricks for implementing wellbeing into your day to day.
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I really hope that you enjoyed and took something from it. If so, please do leave it a review or find it on socials; @insideoutbyamberFind out more from Katie here; https://www.instagram.com/katieemay1/ // https://www.ktmy.co.uk/
**A thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
*All music paid for via EpidemicSound subscription* -
In this episode, I chat to the wonderful Ali Jawad about his experiences of managing Crohn's Disease as a Powerlifting Paralympic Athlete. We discuss things from his childhood & discovering sport, to his Crohn's Disease diagnosis, mindset & resilience to Ali's future plans including treatment trials and research.
Ali is a beacon of empowerment for us all particularly when it comes to overcoming adversity & striving for change.
*Please note, Ali is speaking from experience and this is not generalised medical advice. Always seek your own personalised medical advice & treatment plan*
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I really hope that you enjoyed the episode and took something from it. If so, please do leave it a review or find it on socials; @insideoutbyamberFind Ali here; https://www.instagram.com/alijawadpowerlifter/?hl=en
Another big thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
*All music paid for via EpidemicSound subscription* -
In this episode, I chat to Rachel (&Jake), a mother and son duo who both live with Hirschprung Disease and stoma bags. Rachel discusses experiences of both living with these things herself, as well as mothering a child (Jake) who also lives with these things.
Find Rachel here; https://www.instagram.com/gutsy.mum/?hl=en
Another big thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
Links to things discussed in the episode;
Jessica's stoma journey; https://www.facebook.com/jessicasstomajourney/
ERIC (The Children's Bowel and Bladder Charity); https://www.eric.org.uk/?fbclid=IwAR26QsOckw8eBq_1ZYOIZx-IrQtrWC2CCjL1wLjJuz0LZbqkr6FpTxjSX04
Noah's Ark; https://noahsarkcharity.org/?fbclid=IwAR0P2sm5DCPvhLhf08KjKhxL5jzl6arXLed_Gqk5fQKu-agpeGR2dcu8kGQ
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
*All music paid for via EpidemicSound subscription*Episode is Live
Published: Jun. 28, 2020 @ 7AM Edit
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In this episode I chat to Angelina, founder of Aura clothing – a brand that focuses on creating custom garments and that is motivated by the women and men who struggle to wear everyday clothing due to their ostomy, tubes, scars, hernias, stretch marks or even those who are uncomfortable with their abdominal region. The garments are created and developed through Angelina’s passions and personal experiences having lived with an ileostomy since the age of 13.
Angelina, is someone that I’m constantly in awe of for all that she does and how amazing she is at making people just feel good – I really could chat to her for hours! In this episode we discuss all things business, education and ostomy.
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I really hope that you enjoyed and took something from it. If so, please do leave it a review or find it on socials; @insideoutbyamberFind out more about Angelina and Aura Clothing here; https://www.aura.clothing/ or alternatively, follow @auraclothing on socials.
Another big thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
*All music paid for via EpidemicSound subscription* -
Something that strikes me about Alex, is her body acceptance and positivity particularly over the last year or so having undergone stoma surgery while very much being in front of an audience as an adult content creator and sex worker. In this episode, we cover all bases from discussing young diagnosis to body image, Mental health and careers.
Instead of taking a step back from sex work post surgery, Alex has done her best to embrace her stoma and encourage representation and acceptance within her industry. So, in this episode, we chat about her journey with bowel disease as well as her experiences of working in the sex industry while managing these things.
I’d just like to highlight that Alex and I are speaking from experience and as discussed in last week’s episode with Ruth, a stoma care nurse, it’s always important to discuss your own personal scenario with your healthcare team with regards to things such as intimacy post-surgery.Apologies for the episodes intermittent audio in parts but nevertheless, I really hope you enjoy and took something from it. If so, please do leave it a review or find it on socials; @insideoutbyamber
Find Alex here; https://twitter.com/GoAskAlexMFC
Another big thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
*All music paid for via EpidemicSound subscription* -
In this episode, I chat to ruth jones, a stoma care nurse of over 25 years. We chat a little bit about current affairs and their impacts on the ostomy community before moving on to discuss a bunch of your guys questions including topics of exercise, intimacy and pregnancy. So, on that note, a big thank you to all who sent questions, we try and cover as many as possible in the episode and I must say that ruth answers them brilliantly with some great advice. I know first hand that asking some of these questions can be pretty daunting but, equally, it can be difficult to identify what information is legitimate on places like the internet so, if I can help be the middle man in asking and bringing light to some of these topics then I’m more than happy to do so. Enjoy!
Another big thanks to Pelican & Respond Healthcare for supporting this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
Be sure not to miss an episode and subscribe to the podcast as well as follow on socials to keep up to date and get involved @insideoutbyamber
*All music paid for via EpidemicSound subscription* -
In this episode, I have the pleasure of chatting to the character that is Keith Thomas. Keith, is a fifty something year old award winning bus driver from South Wales who really has taken life post surgery & illness by the horns embracing every opportunity and sharing his journey with others to help uplift and, inspire demonstrating that no matter what age you are, it's not too late to make the most, fulfil and achieve whatever it is that you set out to with a thankful and positive attitude. As we discuss in the episode, if my dad or, grandad even were to go through something similar, I'd really love to know that they had someone like Keith to turn to. He really is so uplifting and is one of those people who just makes you smile and see the best in things. So, please share with anybody who you think would benefit from hearing it and as always, enjoy.
Follow Keith on Twitter at; https://twitter.com/keiththom2014
Another big thanks to Pelican & Respond Healthcare for sponsoring this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
Be sure not to miss an episode and subscribe to the podcast as well as follow on socials to keep up to date and get involved @insideoutbyamber
*All music paid for via EpidemicSound subscription* -
In this episode I chat to the wonderful Zoe Wright about all parts of her journey and life with IBD from stoma surgery to stepping on stage in a bikini as a fitness model as well as her more recent surgeries to reverse her stoma and what might be a shift in focus for her in moving forward.
*Since Zoe and I recorded this episode, there has been an article in the news with regards to a patient’s right to die over living with a stoma. My thoughts go out to that particular man and his family as well as anybody who is feeling similarly. Although I always aim to show a full and happy life with a stoma, there’s no doubt that there are challenging times and it's important that we don’t shy away from discussing these too for a number of reasons. So, I wanted to warn that although this episode is mostly upbeat, we discuss our journeys which inevitably entail some more difficult times and trickier discussions. As always, I feel like these are important conversations to be had and to share and think they will be helpful for the most part. But, if these are conversations that you feel you might find triggering or unsettling then I advise that you maybe skip the episode however, please do remember that as cliché as it sounds, you are not alone and its always important to speak to someone.
Zoe's channels;
Instagram; https://www.instagram.com/zoeywrightfitness/ Facebook; https://www.facebook.com/Zoeywrightfitness
Another big thanks to Pelican & Respond Healthcare for sponsoring this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
Be sure not to miss an episode and subscribe to the podcast as well as follow on socials to keep up to date and get involved @insideoutbyamber
*All music paid for via EpidemicSound subscription* -
I’m excited to start the series off by discussing a highly requested topic area; sex & relationships. It’s not surprising that these are such highly demanded topic areas for discussion and areas of such uncertainty and concern... I can guarantee that absolutely everyone has unmet questions when it comes to these pretty significant things however, throw illness, surgery or disability into the mix and everything can feel even more unclear and even further heightened!
There is no manual when it comes to these things and it really doesn’t help when what feels like everywhere you look for answers or information simply suggests that perhaps you just speak to your partner about sex?
So, I figured, who better to chat to to get this started than a partner. Not just any partner but, in this episode, I chat to my partner, Dan. Before we met, Dan had no real knowledge or experience of bowel disease, chronic illness or stomas. In this conversation, we delve into how we met, the perspectives and experiences of both being that someone with an illness and a stoma in a relationship as well as the flipside of being the partner of that someone and of course, including some of the highs, the lows and the in-betweens.
This conversation may not be PG but, I feel that it’s an important one to be had and to share. I really hope you find some sort of comfort, reassurance or insight in our experiences.
I must note, that we are by no means relationship or, medical professionals. Although we can speak from experience, it’s important to always seek medical advice where necessary.
A big thanks to all that sent questions for this episode. I just want to say that even if we don’t cover them all, I resonated with them all so much. Dating & relationships are scary concepts and everybody’s circumstances are so different.
Another big thanks to Pelican & Respond Healthcare for sponsoring this episode. You can find out more about them here; https://www.pelicanhealthcare.co.uk/ // https://www.respond.co.uk/
For any further advice or support, please contact your healthcare professional(s) or, see to one of these wonderful charities;
Crohn’s & Colitis UK;https://www.crohnsandcolitis.org.uk/
Ileostomy & internal Pouch Association;
https://iasupport.org/
Colostomy UK;
http://www.colostomyuk.org/
BowelCancer UK;
https://www.bowelcanceruk.org.uk/
Be sure not to miss an episode and to subscribe to the podcast as well as follow on Instagram to keep up to date and get involved @insideoutbyamber
*All music paid for via EpidemicSound subscription* -
I'd like to introduce you to my podcast, it's called, Inside Out by Amber and its where I have the absolute pleasure of uncovering life when something like a chronic illness is thrown into the mix with a variety of guests.
As someone with experience of living with chronic, invisible illness and a permanent stoma, as if living some of these things isn't stigmatised enough at times, many topic areas and questions to do with normal daily living are often unspoken of or, difficult to resonate with sometimes making things feel even more confusing, overwhelming and isolating. Not just for those of us going through whatever it may be but, for those around us too.
Everybody, should feel empowered, included and represented through the information and sources available to them. So, throughout this podcast, I get to delve into some really interesting topic areas to do with life when something like a stoma, bowel condition or, wider disability / illness are thrown into the mix through having conversations with some pretty fascinating people; from patients, to partners and athletes to healthcare professionals - I can't wait to share them with you!
Whether you're a patient, a loved one or simply here to learn and find out more, I'd like to welcome you to this podcast as a little safe space where you're all invited. As the saying goes, there really is no such thing as a stupid question and in fact here, no question, thought or topic is off limits. I hope the podcast brings you a little bit of joy, insight or helps in some way shape or form whether thats by answering an unmet question or by helping you feel less alone. Be sure not to miss an episode and subscribe to the podcast as well as follow on socials to keep up to date and get involved @insideoutbyamber
