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In this episode of The Glioblastoma AKA GBM Podcast, we welcome Doug Malchow, who transformed his personal tragedy into a source of support and solidarity for others. After losing his father to glioblastoma, Doug took to Instagram and TikTok to share his journey through grief and caregiving. In candid posts, he expresses the emotional challenges and the profound impact of his father's illness and passing. Through his social media platform, Doug provides a space for others to connect, share their stories, and find comfort in communal grieving. This episode delves into the realities of caregiving, the grieving process, and the power of sharing one’s personal story on social media to help others feel less alone.
Episode Sponsor: Novocure. Visit https://www.novocure.com/ to learn more.
Trigger Warning: This episode includes discussions on terminal illness, loss, and grief.
Visit to Learn More: For more information and support resources, visit GBMResearch.org.
Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options. -
In this episode of The Glioblastoma AKA GBM Podcast, Dr. Ashish Shah, Assistant Professor of Neurological Surgery at the University of Miami Miller School of Medicine and Director of Clinical Trials and Translational Research within the University of Miami Brain Tumor Initiative, dives deep into his groundbreaking research on glioblastoma. Dr. Shah discusses a fascinating study revealing how fragments of a retrovirus, integrated into the human genome millions of years ago, are implicated in the proliferation and progression of glioblastoma, the most aggressive primary brain tumor. This episode explores how these findings from Dr. Shah's research at the Sylvester Comprehensive Cancer Center could revolutionize our understanding of glioblastoma and lead to novel treatment strategies. We also delve into the potential of antiretroviral agents and gene therapy as innovative approaches to target these viral fragments, opening new avenues for combatting this challenging cancer.
Episode Sponsor: Novocure. Visit https://www.novocure.com/ to learn more.
Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, and genetic research.
Visit to Learn More: For more information and support resources, visit GBMResearch.org.
Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options. -
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In this episode of The Glioblastoma AKA GBM Podcast, we are joined by Dr. Betsy Grunch, renowned neurosurgeon and social media educator, known online as @LadySpineDoc. Born and raised in Gainesville, Georgia, Dr. Grunch has built a distinguished career in neurosurgery, specializing in minimally invasive spine techniques and neurotrauma. Recently named among America's Best Spine Surgeons by Newsweek in 2024, she has taken her expertise to social media to demystify complex medical concepts and educate a broader audience. During our discussion, Dr. Grunch shares insights into the dynamic field of neurosurgery, her approach to patient care, and how she utilizes platforms like Instagram and Twitter to bridge the gap between advanced medical science and public understanding. Join us as Dr. Grunch sheds light on the challenges and advancements in neurosurgery while promoting educational outreach through her social media presence.
Episode Sponsor: Novocure - Learn more about their innovative cancer treatments
Follow Dr. Betsy Grunch on Instagram: @LadySpineDoc
Trigger Warning: This episode includes discussions on medical conditions and surgical treatments.
Visit to Learn More: For more information and support resources, visit GBMResearch.org.
Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options. -
In this timely episode of The Glioblastoma AKA GBM Podcast, released just after Glioblastoma Awareness Day, we welcome John Furey, the CEO of Imvax, Inc. John discusses the groundbreaking work of Imvax, particularly their lead product candidate, IGV-001, currently in a phase 2b randomized trial for newly diagnosed glioblastoma multiforme (GBM). He shares insights into the unique challenges and opportunities of developing patient-specific vaccines and immunotherapy strategies in the fight against GBM. The conversation also delves into the broader landscape of clinical trials, highlighting how these innovative approaches are transforming patient care and outcomes in oncology. Join us to understand more about the cutting-edge science that could potentially revolutionize treatment for glioblastoma and beyond.
Episode Sponsor: IMVAX. Visit https://www.imvax.com/ to learn more.
Trigger Warning: This episode includes discussions on medical conditions and cancer treatments.
Visit to Learn More: For more information and support resources, visit GBMResearch.org.
Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options. -
In this compelling episode of The Glioblastoma AKA GBM Podcast, we sit down with Rod Nordland, a distinguished foreign correspondent whose work has taken him across more than 150 countries. Rod shares his personal journey with glioblastoma, discussing not only the challenges he's faced but also his advocacy for disability awareness. He introduces his new book, "Waiting for the Monsoon," reflecting his rich experiences and the profound insights he's gained. Special guest Leila, Rod’s partner, joins the conversation, adding depth to the discussion of Rod's diagnosis and their shared path forward. This episode offers a unique look at the intersection of a life spent in journalism and a personal battle with a daunting diagnosis.
Episode Sponsors: Plus Therapeutics and Imvax
Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, death, grief, therapy, and personal loss.
Visit to Learn More: For more information and support resources, visit GBMResearch.org.
Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options. -
In this heartfelt episode of The Glioblastoma AKA GBM Podcast, we are joined by Holly Gainsboro, a grief specialist and founder of Golden Heart Grief Support and Education. Holly shares her profound journey of loss and transformation following her late husband's diagnosis with glioblastoma. Through her personal experiences and extensive training, Holly has developed unique insights into navigating grief, particularly in the context of glioblastoma-related loss. She discusses the emotional whirlwind from diagnosis to her husband’s passing and how these experiences propelled her into supporting others as they navigate their own paths of grief. Listen as Holly offers wisdom on coping with the complex emotions of grief and finding hope amidst despair.
Episode Sponsor: Plus Therapeutics. Visit https://plustherapeutics.com/ to learn more.
Trigger Warning: This episode includes discussions on grief, terminal illness, and bereavement.
Visit to Learn More: For more support and resources, visit GBMResearch.org and explore Holly's services at goldenheartgrief.com.
Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options. -
Dive into the latest developments in glioblastoma treatment with Tamika Wong, MPH, Director of Clinical Research in Neurosurgery, and Dr. Morana Vojnic, Medical Oncologist and Director of Oncologic Services at the Brain and Spine Metastases Program, both from Lenox Hill Hospital. This episode offers a deep dive into groundbreaking clinical trials and treatments, clarifying complex brain tumor and glioblastoma terminology for a broader understanding. Listen as Tamika and Dr. Vojnic highlight the critical role of hope and advanced care strategies in improving patient outcomes.
Episode Sponsor: Imvax. To learn more visit https://www.imvax.com/.
Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, and clinical trials.
Visit to Learn More: For more information and support resources, visit GBMResearch.org.
Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options. -
In this deeply moving episode of The Glioblastoma AKA GBM Podcast, we revisit the extraordinary life of David Fitting, known as the longest surviving glioblastoma patient in the USA. David first joined us to share his initial battle with brain cancer as a child and his miraculous journey to remission. Now, he returns to discuss his life post-recovery, the challenges of facing cancer multiple times, and his subsequent diagnosis and fight against osteosarcoma. Beyond his personal battles, David dives into his impactful advocacy work, providing hope and guidance to others navigating similar paths. This episode is a testament to resilience and the power of a positive outlook in the face of life's toughest challenges.
Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, and emotional challenges.
Visit to Learn More: For more information and support resources, visit GBMResearch.org.
Episode Sponsor: Novocure. Visit https://www.novocure.com/ to learn more.
Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options. -
In this insightful episode of The Glioblastoma AKA GBM Podcast, we're joined by Dr. Marc Hedrick, President and CEO of Plus Therapeutics. Dr. Hedrick brings his extensive background in surgery and regenerative medicine to discuss the forefront of cancer treatment—targeted radiotherapeutics. He delves into the exciting developments of the ReSPECT GBM clinical trial, addressing the challenges and innovative approaches to treating recurrent glioblastoma, a notoriously difficult condition to manage. Listen in as Dr. Hedrick shares his unique insights on the potential of new therapies and the future of glioblastoma treatment.
Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, and clinical trials.
For more information and support resources, visit GBMResearch.org.
Episode Sponsor: Plus Therapeutics. Visit https://plustherapeutics.com/for-patients/ to learn more.
Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options. -
In this inspiring episode of The Glioblastoma AKA GBM Podcast, we're joined by Dr. Sheri Dewan, a trailblazer among the elite group of female neurosurgeons. With a career that spans across continents and cultures, Dr. Dewan brings her unique perspective to some of the most complex neurosurgical challenges. She discusses her groundbreaking new book, "Cutting a Path," her dedication to global healthcare, and her experiences with charity surgery in Southern India. Additionally, Dr. Dewan delves into medical intricacies and advanced surgical techniques that have never before been discussed on our show. Join us as we explore the intersection of gender, innovation, and compassion in the field of neurosurgery with one of its most dynamic practitioners.
Trigger Warning: This episode includes discussions on surgical procedures and medical conditions.
For more information and support resources, visit GBMResearch.org.
To purchase Cutting a Path: The Power of Purpose, Discipline, and Determination, visit: https://www.amazon.com/Cutting-Path-Purpose-Discipline-Determination/dp/161254620X.
Episode Sponsor: Novocure. Visit https://www.novocure.com/ to learn more.
Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options. -
Join us for an enlightening episode of The Glioblastoma AKA GBM Podcast with Dr. Netanel (Nati) Ben-Shalom, a trailblazer in neuroplastic and reconstructive surgery. Dr. Ben-Shalom, the world’s first neurosurgeon to complete the prestigious Johns Hopkins Neuroplastic and Reconstructive Surgery fellowship, discusses his innovative approaches in neurosurgery that not only enhance surgical outcomes but also significantly improve the quality of life for patients with brain tumors. In this episode, learn about the revolutionary techniques and implantable biomaterials that are transforming patient care, how 3D printing and third-generation cranial implants are used to minimize physical deformities and enhance recovery, and why a holistic approach is crucial for successful treatment outcomes.
Trigger Warning: This episode includes discussions on medical conditions, surgical procedures, and cancer treatments.
For more information and support resources, visit GBMResearch.org.
Episode Sponsor: Plus Therapeutics. Visit https://plustherapeutics.com/for-patients/ to learn more.
Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options. -
In this compelling episode of The Glioblastoma AKA GBM Podcast, we welcome Jordy Glassner, a dedicated therapist who brings a unique dual perspective as both a caregiver and a current patient battling glioblastoma. Jordy opens up about her diagnosis, and how her professional background in therapy has shaped her approach to treatment and self-care. Join us as we explore the emotional and psychological impacts of glioblastoma through Jordy's eyes, offering insights into resilience, therapy, and maintaining hope in the face of adversity.
Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, and emotional health challenges.
For more information and support resources, visit GBMResearch.org.
Episode sponsor: Imvax
*Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options. -
Join us for the Season 3 premiere of The Glioblastoma AKA GBM Podcast, where we delve into the heart and mind of multi-platinum singer-songwriter Mike Posner. In this deeply personal episode, Mike shares his journey through the harrowing landscape of glioblastoma as he witnessed his father’s battle with this aggressive form of brain cancer. As we explore the layers of grief and healing, Mike opens up about how this experience has reshaped his creative process and his outlook on life.
In this conversation, we cover:
The profound impact of his father’s glioblastoma diagnosis and the family’s journey through treatment and loss.
How grief has influenced Mike’s music and artistic expression.
Cherished advice from his dad that continues to guide him.
Mike's vision for living a meaningful life in the wake of personal tragedy.
Mike Posner, known for his hit songs and remarkable resilience, brings a unique perspective on dealing with loss, channeling creativity, and finding purpose amidst pain. This episode is a touching reflection on love, loss, and legacy.
Trigger Warnings: This episode contains discussions on medical conditions, cancer diagnosis, and end-of-life themes.
For more insights and to support the Glioblastoma Research Organization, please visit GBMResearch.org.
Disclaimer: The content shared on The Glioblastoma AKA GBM Podcast represents personal stories and is intended for informational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult your healthcare provider with any questions regarding a medical condition. -
In this episode of the Glioblastoma AKA GBM Mini Series, Amber gives a recap on the inaugural Padel for Brain Cancer event, goes through life hacks as a caregiver, touches on hospice & palliative care, and unboxes her dads things from storage.Topics covered in this episode include:Hospice care & palliative careStaying organized as a caregiverEnd of life & foodSleep & sleep therapyUnboxing your loved ones itemsThank you to our partners at xCures for supporting the Mini-Series season. To learn more, visit their website at https://xcures.com/.Learn more about Earos here: https://earos.com/Learn more about Certifyde here: https://certifyde.com/"Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma.Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research Organization on social media for updates, resources, and to join the community:Instagram: @glioblastomaresearch @glioblastomaakagbmTwitter: @glioblastomaorgFacebook: https://www.facebook.com/glioblastomaresearchWebsite: https://www.gbmresearch.org/ Subscribe now to be part of this transformative journey and contribute to raising awareness for glioblastoma research.#GBMPodcast #Glioblastoma #HopeForTheHolidays**As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
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In this episode of the Glioblastoma AKA GBM Mini Series, we delve into our 2024 plans, dating, and a holiday debrief.
Thank you to our partners at xCures for supporting the Mini-Series season. To learn more, visit their website at https://xcures.com/.
Merch of the week: https://www.gbmresearch.org/shop/p/for-a-cure-20
"Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma.
Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research Organization on social media for updates, resources, and to join the community:
Instagram: @glioblastomaresearch @glioblastomaakagbm
Twitter: @glioblastomaorg
Facebook: https://www.facebook.com/glioblastomaresearch
Website: https://www.gbmresearch.org/
Subscribe now to be part of this transformative journey and contribute to raising awareness for glioblastoma research.
#GBMPodcast #Glioblastoma #HopeForTheHolidays
**As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team. -
In this fourth episode of the Glioblastoma AKA GBM Mini Series, we chat about major questions and topics in relation to resources for current caregivers.Topics covered in this episode include:Glioblastoma nonprofitsFinding support groupsCaregiver benefits & financial aidBooks/apps to assist your journeyThe most important advice as a caregiver - according to AmberSocial workersFinding therapy and support Thank you to our partners at xCures for supporting the Mini-Series season. To learn more, visit their website at https://xcures.com/."Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma.Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research Organization on social media for updates, resources, and to join the community:Instagram: @glioblastomaresearch @glioblastomaakagbmTwitter: @glioblastomaorgFacebook: https://www.facebook.com/glioblastomaresearchWebsite: https://www.gbmresearch.org/ Subscribe now to be part of this transformative journey and contribute to raising awareness for glioblastoma research.#GBMPodcast #Glioblastoma #HopeForTheHolidays**As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
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In this third episode of the Glioblastoma AKA GBM Mini Series, we chat about all things ADVOCACY - on the caregiver AND patient side.
Topics covered in this episode include:
Your role as a caregiver
Asking about second opinions
Navigating clinical trials
Questions to ask your doctor
Decision making
Thank you to our partners at xCures for supporting the Mini-Series season. To learn more, visit their website at https://xcures.com/.
"Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma.
Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research Organization on social media for updates, resources, and to join the community:
Instagram: @glioblastomaresearch @glioblastomaakagbm
Twitter: @glioblastomaorg
Facebook: https://www.facebook.com/glioblastomaresearch
Website: https://www.gbmresearch.org/
Subscribe now to be part of this transformative journey and contribute to raising awareness for glioblastoma research.
#GBMPodcast #Glioblastoma #HopeForTheHolidays
**As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team. -
In this second episode of the Glioblastoma AKA GBM Mini Series, we chat about replying to the question "how are you doing?"
Questions that came in this week included:
When someone asks me how I am doing I feel like I am supposed to just smile and say “fine”. Is this ok?
How do I really tell someone how I am doing when the answer feels so dark?
Am I bringing others down by being honest?
What would be the best way to answer this with honesty without making them regret asking?
I have no idea how to cope with all of this. What can I do?
I am really tired of people telling me to “stay positive”. How can I express that?
Does there always have to be a silver lining? Sometimes I just don’t see one.
"Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma.
Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research Organization on social media for updates, resources, and to join the community:
Instagram: @glioblastomaresearch @glioblastomaakagbm
Twitter: @glioblastomaorg
Facebook: https://www.facebook.com/glioblastomaresearch
Website: https://www.gbmresearch.org/
Subscribe now to be part of this transformative journey and contribute to raising awareness for glioblastoma research.
#GBMPodcast #Glioblastoma #HopeForTheHolidays
**As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team. -
Embark on a journey of support and hope with the debut episode of the Glioblastoma AKA GBM Mini Series - presented by the Glioblastoma Research Organization. Join your host, Amber Barbach, as she unravels the complexities of glioblastoma (GBM) and tackles the unique challenges of managing the holidays amidst this diagnosis.
In this inaugural episode, Amber candidly shares her personal experiences with her family, and offers insightful strategies for navigating the holiday season with GBM.
"Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma.
Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research Organization on social media for updates, resources, and to join the community:
Instagram: @glioblastomaresearch @glioblastomaakagbm
Twitter: @glioblastomaorg
Facebook: https://www.facebook.com/glioblastomaresearch
Website: https://www.gbmresearch.org/
Subscribe now to be part of this transformative journey and contribute to raising awareness for glioblastoma research.
#GBMPodcast #Glioblastoma #HopeForTheHolidays
**As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team. -
Welcome back to Glioblastoma AKA GBM. This 2023 holiday season we're launching our first-ever MINI SERIES which will be a 1:1 to discuss questions and topics that have been submitted through the organization. Launching on 11/30/23.
To learn more about the Glioblastoma Research Organization visit us online at https://www.gbmresearch.org/. - Visa fler
