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  • Dr. Erik Reis is a Doctor of Chiropractic Medicine, Board-Certified Chiropractic Neurologist, Certified Brain Injury Specialist, past brain injury patient himself, and founder of The Neural Connection in Minneapolis, a clinic that focuses on treating complex neurological and orthopedic disorders that range from traumatic brain injuries, dysautonomia/POTS, concussions, and more.  Here he discusses dietary approaches and four dietary supplements that can help heal the brain and keep it functioning at its best.  He's a wealth of knowledge, and offers more information online at his website here and his extensive blog here.

    Dr. Reis's Social Media Links:

    LinkTree Facebook
    Instagram TikTok

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Jess was a busy, active student and essential worker as a medical case worker during COVID, and then her bout with COVID resulted in... hell.  Among many other symptoms, one point she could barely even talk.  But with tons of perseverance she eventually found a good doctor and some relief with IVIg.  Hear her story and advice to others.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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  • In this 3rd Q&A session with the amazing Dr. Dempsey she goes deep on infections as a trigger for MCAS:  How they're transmitted, symptoms, testing, treatment, and expectations for recovery.  This is a not-to-be-missed episode since -- as we learn in this episode -- nearly everyone has likely had exposure to the types of infection that can be at play.

    More information about Dr. Tania Dempsey and her practice can be found at https://drtaniadempsey.com/. 

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Sephora got POTS while becoming an occupational therapist and suffered greatly through her graduate program, but now she reports having no more limitations than her friends and has founded the non-profit support organization that she wishes had been there for her.  It has helped over 600 girls internationally who live with chronic illness.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Dr. Katinka is a chiropractor in Arkansas dedicated to the treatment of neurological pain, a particularly stubborn type of chronic pain often seen in POTS, EDS, fibromyalgia, and CRPS.  Dr. K leaves no stone unturned to try to help these patients and in this episode she discusses her approach to treating these tough pain conditions.  Dr. K's website is here.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

     

  • This is a not-to-be-missed episode between two incredible physicians: Dr. Jill is a highly sought-after leader in functional medicine and a survivor of cancer/crohne's/MCAS.  She and Dr. Dempsey compare approaches to treating MCAS, discuss Dr. Jill's new book and film, and describe some lesser-known treatment strategies like methylene blue with red light therapy. 

    Connect with Dr. Jill at the links below.

     Instagram:  

     / drjillcarnahan  Facebook:  
  • Antonia's fast-paced life as a video/TV producer got a shock starting 10 days after her first COVID shot, but don't miss this episode to hear how she is still producing, finding silver linings, and having some hopeful experiences with steroids. See Antonia's latest show here:  

    https://www.aetv.com/shows/find-my-country-house

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Dr. Erik Reis is a Doctor of Chiropractic Medicine, Board-Certified Chiropractic Neurologist, Certified Brain Injury Specialist, past brain injury patient himself, and founder of The Neural Connection in Minneapolis, a clinic that focuses on treating complex neurological and orthopedic disorders that range from traumatic brain injuries, dysautonomia/POTS, concussions, and more.  Here he discusses how concussions can cause dysautonomia and what can be done to help heal the brain.  He's a wealth of knowledge, and offers more information online at his website here and his extensive blog here.

    Dr. Reis's Social Media Links:

    LinkTree Facebook
    Instagram TikTok

    You can read the transcript for this episode here: https://tinyurl.com/potscast216

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • What are intensive hospital-based treatment programs and how do POTS patients rate their effectiveness?  Dr. Cathy Pederson reports on her recent publication, showing these programs are not for everyone.  Dr. Pederson's article can be found here.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Kait lives on a farm in Michigan and has embraced exercise as a way of life for herself and for her clients.  As a personal trainer and coach, Kait has enjoyed helping many people find wellness, including POTS patients who didn't think they could exercise.  Kait's website -- KO Wellness -- which includes a program for POTS patients, can be found here.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Dr. Dempsey interviews breast surgeon Dr. Eva Nagy about her important new findings just published about evidence of mast cell activation in Breast Implant Illness.  Dr. Nagy is the world's leading surgeon for explant surgery and previously covered Breast Implant illness in episode 184.

    Dr. Nagy's website is here and her new publication is here.

    Dr. Dempseys website can be found here.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Laura has been described as a 'gregarious chameleon' and a force to be reckoned with.  This mother of 2 estimates she's about 80% improved since her worst days, but she's had to work for it.  Hear her story in this episode.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Nobody answers your MCAS questions as rapid-fire as Dr. Dempsey!  She's back to answer listener questions, addressing the topics of anaphylaxis, Epi-Pens, difficult blood draws, itching, what to do when otherwise healthy or important activities cause flares, and so much more.

    More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/. 

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Lexi is a busy mother of 3, a pediatric nurse, and started feeling POTSy while standing in lines at military school.  Now she's a wealth of information and tips for dealing with medical situations.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Dr. Kelly McCann is a leading educator on MCAS and related complex disease, with her online seminars and an approach that combines functional, integrative and environmental medicine.  Drs Dempsey and McCann have a far-reaching conversation about MCAS strategies and factors ranging from mindset to muscle testing to genetic predisposition for breaking down fibrinogen blood clots.

    More information about Dr. McCann's practice can be found at https://thespringcenter.com/

    More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/. 

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Laura and Sharon became great friends while they supported one another through dysautonomia and related conditions.  Between Laura's writing experience, Sharon's nursing career, and their joint ability to find the humor in every situation, they decided to help others by writing The Dysautonomia Diary:  Essays and Tips for Enjoying Life Despite Chronic Illness.  Their book has a foreword by Dr. Blair Grubb and is available here on Amazon. 

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Dr. Neil Nathan is the leading expert on mold and mycotoxin illness, and in this episode he and Dr. Tania Dempsey discuss how mold can cause chronic illness and how to treat it.  They also discuss Dr. Nathan's new book, The Sensitive Patient's Healing Guide, available here from Amazon.  Dr. Nathan's other books and resources, plus information about working him, can be found at https://neilnathanmd.com/.

    More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/. 

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Brianne Dressen founded React19 to help people struggling with Long COVID and COVID vaccine injuries after being injured herself in a COVID19 vaccine trial, and learning the hard way that there was not a resource for adequate answers, treatment, financial or social support, or representation.  Now she oversees 100 volunteers who have created a provider network, are funding and conducting research, are lobbying congress to address inadequacies of the compensation programs, are fighting court cases, and giving out grants to pay for medical bills of select patients.  Learn more about Brianne's science-backed work to help patients at React19.org.

    If you have been injured yourself, you can participate in their IRB approved survey here.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

  • Dr. Tania Dempsey shares her passion (and some tips) for bodybuilding, because she has been nominated to be on the cover of Muscle and Fitness Hers magazine!  If she is voted to be on the cover, it will raise awareness of complex conditions like POTS/MCAS/hypermobility spectrum disorder, AND Dr. Dempsey would donate the $20,000 prize to the documentary in progress about the Triad.  You can vote here (and see how strong she is) through Thursday, May 16th, 2024.

  • Dr. Julie Hubbard Maamari is a Perioperative Clinical Pharmacy Specialist who helps patients before, during and after surgery by making sure they get the best medications for their needs.  She has helped many complex patients, including those with POTS, MCAS and other hypersensitive or allergic conditions, and she has authored peer-reviewed articles.  Dr. Maamari discusses what patients and their doctors can do to prevent mast cell reactions and have the safest, most comfortable outcomes. 

    The free patient guide by The Mast Cell Disease Society, with worksheets for emergency room response plan, list of medications to favor or avoid with MCAS, and surgical medication plan can be found here.  

    Dr. Hubbard Maamari's published article on perioperative consideration in patients with MCAS can be found here.

    If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate

    Tell us what you think of The POTScast or send us your idea at [email protected]!

    Find out more about Standing Up to POTS! Check us out on our
    Website: www.standinguptopots.org
    Facebook: https://www.facebook.com/standinguptopots/
    Instagram: https://www.instagram.com/standinguptopots/
    Twitter: https://twitter.com/POTSActivist
    Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/

    Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.