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April 20, 2023
Irene Lara-Corrales, MD is an associate professor of dermatology at the University of Toronto and a pediatric dermatologist at The Hospital for Sick Children (SickKids) in Toronto, Canada. She always knew she wanted to be a pediatric dermatologist, and her interest in epidermolysis bullosa (EB) grew deeper after treating a young baby with EB during her residency in Costa Rica. Most recently, she’s been championing Hidradenitis Suppurativa within PeDRA and the greater pediatric dermatology research community. Watch or listen to learn more about her passions, including her love of books and tea.
To listen to the new podcast - Unraveling HS, please click here.
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In Episode Two of Getting to Know Your Research, Dr. Kristen Berrebi discusses her 2020 PeDRA Research Grant, A Multi-Center Retrospective Cohort Study on the Utility of Ancillary Studies in the Risk Assessment and Management of Spitz Nevi, Atypical Spitzoid Tumors, and Spitzoid Melanoma in the Pediatric Population. Learn more about this project and the pivotal contributions of medical students and trainees in the research process.
This podcast episode builds upon a previous Points of Discussion focused on Spitz Nevi. To listen to that discussion, please click here.
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Saknas det avsnitt?
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Dr. Yvonne Chiu discusses the findings of her collaborative study – Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations. Learn about the different morphea categories, and whether or not certain locations of linear morphea are risk factors for extracutaneous involvement. This webinar originally aired in 2021. To view the video version of this presentation, please click here.
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Dr. Streicher is an Assistant Professor at Indiana University School of Medicine. She’s currently co-chairing PeDRA’s Birthmarks Focused Study Group*. She became interested in pediatric dermatology while in medical school at Indiana University after completing a peds derm rotation with Dr. Anita Haggstrom. Her training took her to Georgia and Pennsylvania, and she’s come full circle back to Indiana to work alongside Dr. Haggstrom. Learn more about her work with the Birthmarks Focused Study Group and why she’s been reading so much by Julia Donaldson lately.
*This episode originally aired in May of 2021. The Birthmarks Focused Study Group is now chaired by Denise Metry, MD and Maria Buethe, MD, PhD. For more information please visit www.pedraresearch.org.
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In this episode, PeDRA Pub Club host, Donglin Zhang and guest panelists, Christina Boull, MD, Diana Reusch, MD, and Cristina Foschi, MD discuss a recent PeDRA publication, Clinical Characteristics of Infantile Hemangiomas with Aggressive, Persistent, and Destructive Ulceration. This collaborative, multi-site, retrospective study was originally published on October 16, 2023, in Pediatric Dermatology and was supported by a 2016 PeDRA Team Research Grant and a 2021 PeDRA Study Support Grant. Whether you’re a longtime pediatric dermatologist, currently in training, or a patient or advocate who wants to learn more about the latest research in pediatric dermatology, this podcast is for you. In an approachable roundtable discussion, listeners will gain insight into publications relating to pediatric dermatology and learn what the research means for patients and providers.
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Hidradenitis Suppurativa (HS) expert, Haley Naik, MD of the University of California, San Fransisco joins Drs. Cotton and Lara-Corrales for a comprehensive discussion about diagnosis and treating early onset HS in the clinic and highlights the specific research taking place globally to help change outcomes for pediatric patients suffering from this devastating condition.
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Welcome to "How We Made it Count," a special podcast that takes you behind the scenes of the Eczema Counts project. This collaborative effort, fueled by an engagement award from the Patient Centered Outcomes Research Institute also known as PCORI, aimed to educate and inspire caregivers, patients, and researchers alike. Through a series of virtual games and in-person sessions, Eczema Counts went beyond conventional approaches and brought a unique blend of gamification and patient-centered outcomes research to the forefront. Listen as key members of the project reflect on its impact, share their thoughts for the future, and dive into the fascinating world of pediatric dermatology research and the innovative partnership between the Pediatric Dermatology Research Alliance and the National Eczema Association.
For more information visit PeDRA, the National Eczema Association, or Eczema Counts.
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In case you missed it, PeDRA produced two sponsored webinars with Novan in the Spring of 2023. If you would like to view the video versions of these presentations, please click here. For more resources about molluscum, please click here.
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As we gear up to release the first episode of our new Hidradenitis Suppurativa Podcast series, we dipping into the archives for a publication presentation from Dr. Irene Lara-Corrales about this international, multicenter, retrospective, cross-sectional study of 481 pediatric patients revealed a gap in diagnosis, and that HS patients are likely to suffer from other comorbidities. Learn more about the study, recommendations for managing patients with HS, and recommendations for future research. To view the video version of this presentation, please click here. Stay tuned for the upcoming HS series!
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Dr. Markus Boos discusses the influence of gender and sexual identity in adolescent skin health. His findings reiterate the importance of recognizing implicit bias and ensuring sexual/gender minority (SGM) children are being treated with the same holistic, respectful care as non-SGM children. Watch to learn more. To view the video presentation of this program, please click here.
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Season four of Getting to Know You shakes up our format with a new twist. This season, we are getting to know the amazing research that PeDRA members are doing. In our first episode, nurse practitioner, Emily Croce, PhD, MSN, APRN, CPNP-PC talks us through her 2022 Childhood Eczema Challenge grant, The Role of Outdoor Air Pollution on Disease Burden and Racial Ethnic Disparities. Learn how this project made use of existing data to reveal some key findings, the tools and methodology used in this study, and how this project is going to fuel future research into the intersection of atopic diseases and racial and ethnic disparities. You can view Emily's collaborative publication here.
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Lisa Arkin, MD presents the findings of a PeDRA study: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis. This program originally aired in May of 2020. To view the video version of this presentation, please click here.
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In this mini Community Spotlight, PeDRA shines a light on The Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID). Learn about the work AHSID does for the patient and provider communities in an interview with founder and CEO Jasmine Espy.
AHSID has volunteer opportunities! If you are interested in volunteering, please click here to apply.
To view the video version of this interview, please click here.
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Listen now to a special PeDRA Publication Presentation about a recent collaborative publication in the British Journal of Dermatology. Alexis Sokoloff is a young woman living with Down syndrome and hidradenitis suppurativa (HS), and together with Dr. Jillian Rork, Morgan Dykman, and Gwen Sokoloff, she discusses the publication and shares what she wants providers to know about treating HS in the Down syndrome community.
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Co-editors of Pediatric Dermatology, Lionel Bercovitch, MD, and Andrea Zaenglein, MD, and chair of PeDRA’s Outcomes Committee, Carrie Coughlin, MD, MPHS, offer guidance to reviewers on how to evaluate a manuscript and advice to authors on preparing a strong manuscript for submission. These skill sets are not only important for career success, but they help make a positive impact in the field of pediatric dermatology. To view the video version of this program, please click here. This program originally aired in July of 2022.
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The Drugs and Bugs Focused Study Group presents a spirited conversation on whether Reactive Infectious Mucocutaneous Eruption (RIME) should be a separate condition from Stevens-Johnson Syndrome (SJS). Moderated by Dr. Michele Ramien, Dr. Erin Mathes, and Dr. Yvonne Chiu debate RIME, SJS, and other blistering severe cutaneous adverse reactions. In this three-part miniseries, episode one presents the case for RIME, episode 2 states the case for SJS, and episode three is a moderated discussion between the two opposing sides to highlight the research still needed to come to a consensus, while also shedding light on active research in this area. The program originally aired in June of 2023.
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Past PeDRA Research Fellowship Grant recipient, Angel D. Pagan Gonzalez, MD, presents this single-site research study about the success of Dupilumab in children and adolescents. Dupilumab Improves Clinical Scores in Children and Adolescents with Moderate to Severe Atopic Dermatitis. To view the video version of this presentation, please click here.
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Blistering severe cutaneous adverse reaction in children: proposal for pediatric-focused clinical criteria. Dr. Michele Ramien summarizes a collaborative study on blistering severe cutaneous adverse reactions (SCAR) in children. It’s very important to diagnose these reactions early and accurately as they can be life-threatening. The study created categories that are more appropriate for diagnosing pediatric patients than what existed in the past. Watch to learn more about the impact on patients and the next steps. To view the video version of this program please click here.
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Happy New Year and welcome to the January 8 Monday Re-release: Maximizing Relationships! Learn about maximizing relationships between attendings and trainees. Dawn Eichenfield, MD, PhD, Cheryl Bayart, MD, and A. Yasmine Kirkorian, MD along with their trainees share their wisdom in this round table discussion about creating a research relationship that’s mutually beneficial for both attendings and trainees. This podcast originally aired in May 2023.
- Visa fler